I will be taking part in a clinical trial on 2nd February where a neurostimulation system will be implanted into my spine as near as possible to the nerves that go down to the foot, this is to try to alleviate some of the electric shock type of pains that I currently get in the feet that I do not have, hopefully I will get some benefit from this and it may go on to be a routine procedure. I will update info as and when there is anything to report.

5 Replies

  • That sounds very interesting and fingers crossed that it does significantly reduced the nerve pain that you get shooting down to the feet that aren't there. Do let us all know how you get on. Best wishes

  • Wow legless, that is fascinatimg! Altho I still have my feet (minus toes because of Meningococcal Septicaemia 37 years ago, I still have "foot pain" 24/7. I'll be very interested to hear your comments on this procedure.

    Are you in the U.S.?

  • I am in the UK, pain consultant has advised it could take up to 6 month before I get any benefit but feedback so far is that half of those who have had the procedure have reported a 70% reduction in there pain.

  • I hope this works for you.

    I wonder if you would benefit from the same type reconstituted vitamin that I am taking to reduce my headaches. It is a nerve repair vitamin called Cerafolin NAc. I would be curious to know if your Doctor has heard of it.

    Yes it is three commonly found vitamins BUT, they have been reconsititued and work differently than if bought separately. I have gone from being unable to concentrate for long periods of time due to headache and fatigue stress to ding things I did concentration wise pre mengingitis.


  • Hi Legless,

    so sad you have been suffering this debilitating type pain. I say this because, even though i didnt lose any limbs as such, I also suffer this type of pain. It has only recently started happening post 3year Meningitis. I have had two bouts of this dreadful disease and I was also told on my second admission, and Brain Scan, that I also had a benign Brain Tumor. It is horrid, so I can relate to some of what you are experiencing. My thought's and prayer's go with you. Look forward to hearing of a positive response.

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