Hi, I'm brand new to this site, although I am a member of other Healthunlocked forums which I've found to be vitally supportive and helpful. I'm hoping I may finally get some answers now I've plucked up the courage to join.
I have twice been hospitalised with aseptic meningitis, the last time meningo-encephalitis involving inflammation of the membranes and brain itself. I know I'm lucky because I didn't get bacterial meningitis, but unusually, this second time, I was particularly unwell because of neurological changes and I spent a fortnight in hospital on anti-viral medication and in renal failure, and to be honest, I have never really fully recovered.
They still do not know what caused the virus as nothing could be cultured, and I was cleared neurologically. However, I was left for around 9 months with an unexplained narcolepsy-type syndrome where I would fall asleep as any time or place, doing anything, and sleep deeply, for several hours without be able to be roused by any means. My memory has been greatly affected, my cognitive function is poor and I lose my train of though 4 or 5 words into a sentence. I have had to give up my job as a barrister because I simply became incapable of doing anything remotely cerebral after an 11 year successful career prior to this. I am exhausted, stripped of confidence and prone to catching every illness going too.
I just wondered if anyone had been affected in this way by viral/aseptic meningitis (rather than the more serious bacterial type) and if, having contracted it twice in 10 years already, whether I am likely to be struck down by it again? My fear is that if I am, is it likely to increase in severity each time? Part of me can't help wondering if it's more than unluckiness that has seen me diagnosed twice (both times by positive LP and involving long recovery).
Sorry to ramble, and thanks if you have got this far!