my adult son has been living in a placement which only lasts fir two years with the expectation that he would then be placed elsewhere. With this in mind we approached social services who have added him to a waiting list for assessment.
Would my personal savings, my house etc be taken into consideration when assessing his payable contribution?
He is autistic, has nightly incontinence, wears hearing aids, has mental health issues, anxiety, panic attacks etc etc.
Not sure, but I think depends on his age
Your personal situation will not be taken into account in the funding of your son's next placement. Good luck.
Hi Allotment 25,Not sure I can be of any help but I would have thought the fact that your son is an adult and has been living independently from you for the past almost two years would mean that he would be assessed as such in financial terms also.
I think the assessment would be mainly geared towards determining whether or not he will need the same level of support when the current two year period/placement is up and his options moving forward.
We live in Essex and were told by the Social Worker that if my daughter moved into Supported Living that she would secure funding on her behalf but it was also offered on the basis of a two year placement at which point she would be moved into a council flat...
Like your son, my daughter is Autistic with severe anxiety and OCD, she is non-speaking and suffers chronic pain affecting her mobilty. I felt it wrong that the SW's attitude came across that two years in Supported Living would suddenly make her able to "cope" with everything and be able to live completely independently as there was no mention of a further assessment at the end of the two year period.
Again, I don't see how your financial means could be taken into account in this situation as presumably your son's SL has been funded by the local authority these past two years but that's only my opinion.
I wish you both well and good things for your son moving forward, it must be a worrying time for you both.
You’re right. What happens after the 2 years placement? I suppose your daughter will get some sort of support once living in her flat. Best wishes.
Thanks Barbado. To be honest my daughter does not feel able to cope with the uncertainty/anxiety that comes with moving into SL and then being moved on (to a place she would have no say in choosing at any time during that 2 year period), nor the upheaval of moving again, so I believe at this point we are going to go straight to a council place (she has been on waiting list four years) and if that does not work out for her then SS would surely have to accept that she needs a long term/permanent placement....Reading on here (let alone in the media) the many instances of problems with staff and consistency in general, etc., with SL makes me wonder if she would be any "safer" in SL than living completely alone anyway but, like all our children, she is very vulnerable and I find it hard to see how that will change.
I have asked before how people get a permanent placement in SL as I believe that is ideally what she needs but that seems to be a grey area and a bit pot-luck ...
Another thing is that she is a very private individual and my concern is whether or not this would be respected or if she would be "forced" to do things she was not comfortable doing (I know this happens, I have personal experience of it when working as an advocate for a lady with Down's Syndrome).
The other side of course is that she will be completely alone in the middle of a council estate and unable to open the front door or call for help if she needs it and, when I am no longer here, entirely dependent on carer's turning up, etc., but we obviously have to start somewhere.
Ideally, I think a place like sheltered housing would suit her as you are pretty much left to your own devices (but, of course, that's not an option for her for about 30 years), but knowing she was within a relatively secure building would give us both some peace of mind and be a much calmer environment overallķ (it concerns me how she will cope with noise from neighbours etc., as she is so hypersensitive to practically everything). That's just a pipe-dream of course and I imagine if Supported Living works then that's what it's like.
Listening yesterday about the hopeless situation with SS lack of funding and social care having to be cut back even more is as terrifying as all the talk of benefits being taken away and individuals being "made to work" it all feels incredibly dark to me personally I cannot lie.
Our personal experience of SS is terrible and I have yet to meet a decent SW. We have had the lies, the turning up late, the not turning up and much more believe me; complaining did not work, we were told that the SW in question was no longer in their employ so they could not answer for her (where else would you get away with that?!). I think Steve makes a very good case for adopting the stoic attitude and basically not giving up (which I did on two separate occasions) as the only people that have the power to get what we need are the one's that play all those games so I guess we just have to be one step ahead of them and be persistent, especially with the record keeping too!
My apologies to Allotment 25, I feel I have completely hijacked your post here; didn't realise how much I needed to say all this aloud, once again
I do wish you and your son all the very best moving forward Barbado. Take care xx
You’re right there’s not enough done for young people with additional needs. My daughter was on a list for housing for 6 years and we wanted to make sure that she was getting adequate accommodation as she is vulnerable. You have to be vigilant with the accommodation they offer you. If I would be you I would contact my MP and explain your situation. Hope this helps?
Hi no they wouldn’t include your house or savings
No they definitely won’t take your money into account.
No definitely not
Guilt 
Hello
adult with autism/ld moving on
Recognition of Disability
