My son with profound learning disabilities is going into supported living and I’m all confused about benefits? Will he get:
PIP - mobility and care component
UC
Housing benefit
Will he have to pay for care through his benefits if so how much? He currently has £5K in savings.
Thank you so much for any info.
Hi quick reply have you looked at previous post within the last two weeks on the same subject and answer your questions and I know you may not have time sorry if you don’t try ind all your answers
yes my son gets all these and in supported living accommodation
Thanks for replying. Do you have to pay towards his care? I’m trying to work out how much he’ll have left for activities once everything is paid out!
I know I have to pay for utilities, wifi, food. He’ll get a mobility car, it’s just so mind blowing!
I get nhs to help pay for his care and the Care Home Manager arranged this and social worker helped
Thank you so much for this info
The trouble we have is we want to get a car for our son who is in supported living. Firstly so he can go further afield and secondly to use up his motability allowance as his savings are accumulating but hardly any of his carers drive. I have spoken to his manager about it and he said there is a shortage of drivers in the care sector.
If he has profound learning disabilities you should look into NHS continuing care which means he won't have to pay for social services care costs.
Full PIP is £737... ESA or universal credit is around £800 every 4 weeks.. Your son may be entilited to full hosting benefit.
If you son has to pay a contribution towards is care they'll take all his PIP care... When they do the financial assessment you need to add things like if he needs extra nappies, wipes and personal care items, extra washing, bed pads, clothing. and they deduct this from what he needs to pay for care.
Over 6k in saving, benefits reduce, something like £6 for every £250 ones has over 6k... Over 16k you will not be entailed to benefits or housing benefit. Its best to keep savings under 6k for this reason.
Wow, this is really informative I hadn’t thought about those! Thank you so much.
If you have any other questions if I can answer I'm happy too.. ''Mum to two disabled sons who have been through the system''.
Just to add. There are two types of support services offered by social services depending on the needs of the person. Full Residential care or supported living. Residential (I think) is the less restrictive care where the person is funded for all their care and they don't get benefits, they get something like £25 a week to spend for them themeslfs.. Supported living the person gets full benefits and its a more holistic care setting.
My oldest son has severe LD and is in supported living and supported living for him offers him more opportunities because he gets all his benefits. He's being supported well with a good team. I'm in my 70s now and I can't be more pleased because I was worried for a long time about his care because I won't be around much longer.
Thank you.
My son is about to leave residential college to supported living, I’m hoping he has enough to enjoy activities after all his expenses come out!!!
He currently gets UC (£727) and the mobility component of PIP. He’ll get housing benefit but didn’t know whether he’s entitled to the care component too or whether it goes for his care as it currently does. And then how much out of that £727 will go on care. Will we have to pay for all his pads (about 5 a day)? Do we have to pay for his day centre? Sooooo many questions and stress!
Sorry for all the questions, I’m really appreciative of your help.
When he moves into supported living he would get back his care PIP back again. DWP normally take this away if in residential college or hospital. So in supported living he will be entitled to this again.
He will get housing benefits. My oldest son gets full housing benefit for his room in a 4 bed property with similar level people in supported living. You son will still be entitled to PIP care regardless of housing benefit
Your son will be entailed to both hight rate of PIP care and mobility. If he needs to pay a contribution towards his care they will only take his PIP care payments. So this leave roughly £200 a 4 week month from his mobility.
The 5 nappies a day which I know comes to a lot costing a month, That will be apart of his health needs so they should deduct that amount from his care costs. As well as anything else disable related.... Remember to add everything... Wipes skin cleaning foam.. Disposable bed pads for changing, gloves, all personal care items and these will be deducted from the care costs.
You should be looking at something like £400 a 4 week month for charges from social services for care..
My 47 year old son went into supported living last May. He receives DLA highest rate for care and mobility plus EESA.He has£9 k savings and that does not alter his benefits, that only changes if they have £16 k. So your son should keep all his benefits. When he was in residential college,20 years ago he didn’t lose his care component as he came home every weekend.He shares a house with 2 others. Each one is assessed to determine what support each one needs. My son has 24/7, the 2 othered get some 1-1 and some shared hours. Supported living is about each tenant and their needs.We gave up our mobility car when he moved and he pays monthly towards his transport costs. His financial assessment a couple of years ago determined he pays £62 a week towards his care, he still pays this amount. He gets HB which pays his rent and costs for the Specialist Landlord , they pay for the gardening, repairs , money put aside for replacing white goods etc. He pays for shared utilities. His food and personal items is approx £50 a week. Good luck it is a very stressful time SS took a year to agree with the Care company the funding. So far working well the staff are lovely and my son is happy.
Thank you so much. I’m so impressed with this site everyone is super helpful and informative
I always thought that if they have savings over £6,000 their benefits decreased by £1 for every £250 over £6,000. It could be more than £1 now as this was years ago. Over 16,000 their benefits stop. How do I confirm this has changed as you say and they are allowed £16,000 now without any consequences?
Yes that's right, it's reduced by £4.35 now and stopped if they have £16000
my son moved about 3 years ago. He’s 26 now and has been funded 100% by NHS continuing healthcare since he was 18 but sadly last year, after two appeals we lost that. He’s now funded 70% social care and 30% NHS. It doesn’t matter what the percentage is though if you don’t have 100% nhs funding he’ll have to pay.
Once in residential care (not sure on supported living) you lose the daily living component of pip. He lost that when he started residential college too. My son gets £809 UC and pip mobility and he pays £156 p/w towards his care. As he’s residential all food/bills are included but he does have to pay for mileage and toiletries, clothes etc himself! Obviously we still have to financially support him as £30 a week doesn’t cover much.
When he’s home for a visit I claim the care part of his pip for the time at home.
Can I just ask why was he moved back to majority social funding? My daughter is 100% health for 7 years and each year after review they tell us things will continue as they are .
She does require 24/7 support including full personal care and waking night staff as sleep unpredictable,but no health issues like epilepsy or diabetes.
I’ve no idea really.! I’ve appealed twice. They say he was overscored possibly when he was 18. Where he lives now he needs 2:1 support at all times due to behavioural issues. He currently has 1:1 overnight too. He also has epilepsy. His fees at his placement are £6,800 per week due to level of staffing needed. The domain we spent almost 7 hours discussing (arguing over) was behaviour. They said unless he’s in a mental health unit he would not score severe in that area but he did score severe in that area 7 years ago and he was at residential college then. Honestly I think his placement is so expensive nobody wants to pay. Even after we lost the appeal it took a further 7 months for them to come to an agreement between themselves on the % split.
That is shocking that health funding has been stopped despite initially qualifying for it at age 18. Health needs don't usually disappear once they reach a certain age.It was opposite for our daughter who was turned down at 18 probably due to myself not giving worst case scenario for her needs.
It was when all social support was going to be stopped when she was 21 that her social worker at the time promoted us to re apply for health funding, which we did and with the help of one of her support staff got full funding.
The yearly reviews continue to award her full funding including her latest one while in supported living. She is age 29 now. I spoke to the nurse who did the review , and her waking night staff support will continue as will the extra funding for transport as she still needs both.
Sorry for your situation would you be able to have your son reassessed for CHC?
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