assisted living

[Beansprout1]

we are thinking about assisted living for our 22 year old daughter with severe autism and learning difficulties. We don’t know where to start. Social services aren’t being helpful.

Any advice would be helpful.

[Galwaybay2]

Why are they being unhelpful? It is their job to assess your child as the first part of a slow process. Unless you intend to fund the move and not many of us are in that position, they have a job to do. The availability of suitable accommodation comes later and is another matter. I found that persistence usually helps and being ready to make your needs clear even though it can feel as if you are forced into exagerating difficulties is necessary for the sake of a future for your daughter.

[outdoorsy1]

keep on at SS - I'm afraid you have to be persistent to get anything... I once had to ask what the procedure to put in a complaint was, after I had been endlessly fobbed off, I asked for the complaint form to be sent to me and do you know what... by complete coincidence (not) SS managed to phone back within the hour and make the appointment they had been avoiding up until then...

[Mybestfriends]

Email NAS National Autistic Society. Look up on Google or LDT Also google Learning Disability Team. Sorry thats all make sure Sw & a OT

[49Twister]

You can’t start the process without social services. They should offer you an assessment for your daughter and yourself to find out the needs of both of you. You need to even demand this as they have a duty of care. Contact them again and request a care assessment. They will have to allocate a social worker to do this. Depending which area you live this could take some time as social care is generally in crisis. You have to be persistent as they are quite happy to let parents continue to look after their adult children.

[flaounes4T]

I have opposite problem. My son is high level ASC- does not want shared/support housing, but NAS do have Advice hubs. Have you got good GP help? NAS HQ London should give you your nearest contact point. Good luck flaounes4T