help when I die needed for my 2 autistic children when their left suddenly alone

[jornjenny78]

i HAVE MADE a trust will for my 2 grown up adults with severe autism and learning disabilities how ever I need to know what to do when my 2 adult autistic grown ups are suddenly left in my house without anyone to help them they will own my house which forms part of the trust will but I have no body to take care of them when I die and they are suddenly alone in our big house. My will provides a trust fund for them and they receive my home but I need to set up somehow a means in my will for somebody or some sort of immediate full time support on the day and after my funeral.

[Eeviee]

Hi there. I would get in touch with Mencap wills and trust services asap

[orcopian]

I would also encourage you to share your concerns with "The Patients Association" . They now have a "case work section". This may well be a new problem/issue to think about but you are not alone and I am sure other parents will be sharing the same concern. Dr Rigler

[BenjiB]

My son has severe autism and severe learning disabilities. He couldn’t live alone, he’s 23 and needs 24/7 support. In September he’s moving into a residential placement as I want him settled while we are still alive.

If i were you I’d definitely contact mencap wills and trusts and seek expert advice. In all honesty I don’t think your boys would be provided with full time care in their own home so you need to look into this carefully. Who will be in charge of the trust?

[XGCC]

The house will pass to the Executors/Trustees rather than your children. Speak to them about your wishes. Responsibility for vulnerable adults belongs to social services authority. Our authority had carers emergency scheme although this is just for the immediate 24 hours not long term and will get in touch with named contact e.g. if you have to go into hospital.

[SpeedyH]

Hi there. If you are not already in touch with adult social care, now is probably a good time to do that. They can assess your offspring to see if it might be a good idea to start introducing support now, or if not they can help you write a contingency plan and store it on their system so that when the time comes it is documented.As others have said, it might be an idea to contact Mencap for advice. The type of trust that you have set up is important, and if it is not the correct type your house and funds will be taken to pay for their support after you are dead.

[CrazyDaisy68]

It is such a worry, isn't it? As well as a Trust, I was advised to write a 'letter of wishes' which lays out to the Trustees how you envisaged your children's lives after you are gone. You can be as specific as you like and I am sure this would be really helpful to guide your Trustees.

[Johnb4588]

Hi, I’m in a similar situation with a adult daughter, I have also set up trusts etc and she will be financially secure which is the easy bit, I tried Mencap and to be honest found them pretty useless so am now in the process of trying to get a assessment of needs via adult social services which is an epic! I’ve also contacted our local caters association and tho early days found them to be supportive. I hope you find a solution as I know the worry and stress your feeling if I get any information worth sharing I will let you know, good luck.

[Eeviee]

Hi. If you already have the correct will and trust in place with trustees already named and willing to operate the trust and basically do all the admin that you do now then the care component is a separate matter which needs to be addressed asap. This needs to be put in place before you die as it takes a long time to get the local authority to help and you are not getting any younger. so get in touch with adult social services asap so that you can have 24/7 support in the house where they live now. That will be hard to achieve but it depends on your age and health and your local authority too as to how quickly you might be able to get this in place. Your children will also need time to adapt so get on with it for their sake as well.

[Nellie_Supports]

Hi

Our team at Nellie Supports would be happy to have a chat to discuss what help we could offer to mot only put your mind at ease but ensure your sons have what they need for the future.

You can email us at [e-mail]