Advice and help pls : This is a bit long winded so... - Mencap

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Advice and help pls

Mummyof03 profile image
9 Replies

This is a bit long winded so pls bear with me.

My middle daughter is 7 and I believe there is something wrong with her. I've added what her symptoms are to see if anyone has any advice.

On melatonin to help sleep, she's always been a bad sleeper but she can't shut down at bedtime and without tablets she can stay up till gone 10. Behind in all area's at school, needs support when starting a new task and needs support throughout, no empathy when she hurts her siblings, overly clingy to only me, cannot do than more than one task at a time (put 2 different types of things away in 2 places) easily upset, shuts down when overwhelmed by situations, doesn't understand words when your explaining things, has anger meltdowns, can be overly loud in situations.

Shes on a myplan at school, I've spoken to the senco lead at sch and she looked at me like I was making it up.

She's due a melatonin review with the doc over the phone on Saturday and I've done the review under mental health to see if I can get any help from them as I feel like no-one believes me.

I know in my heart that there is something wrong and I want to get help for her. She's going into juniors next month and I don't want her to struggle.

Does anyone have a child like my beautiful daughter.

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Mummyof03
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9 Replies
Jofisher profile image
Jofisher

Bless her after reading your post I’m not saying this is her issue but have you checked out Autism or Aspergers diagnosis just to see if this sounds like your daughter. If you read it and feel it could be then you need some advice speak to the Autistic society and or Mencap helpline to see what suggestions they can offer you and your daughter. I wish you luck in getting to the bottom of this and remember Mum’s sense these things so go with your heart and your instinct and push as hard as you need to do you can get the help and support you both need.

Mummyof03 profile image
Mummyof03 in reply to Jofisher

Thank you 😊 she's got some of the aspergers traits. I've been saying something is wrong for years but on one believes me, its so frustrating. She's got a older and younger siblings and every child is different but she's different in so many ways. Her 4 year old sister can count better than she can, she's only just learnt to count to 100 (lock downs haven't helped)

If I don't get anywhere with the doctors on Saturday I'll definitely call mencap and see if they can offer any help.

BenjiB profile image
BenjiB

I think maybe an assessment for asd is needed. There is no Aspergers diagnosis anymore, everything falls under ASD. I would start with the gp to get a referral. If she’s behind at school I would also start the process of getting an EHCP even if school aren’t supportive. You can do a parental request. IPSEA is a good resource and has standard letters you can copy.

Mummyof03 profile image
Mummyof03 in reply to BenjiB

Thank you, I'm going to see what the doctors say tomorrow but I'll definitely go down the ehcp route. She needs it and it's so frustrating that the school have been so little support.

BenjiB profile image
BenjiB in reply to Mummyof03

They tend to turn down nearly every new application but don’t let that put you off, it’s just to see who’ll push it. X

Manyjobs profile image
Manyjobs

My daughter is now 18 but when she was primary age whilst she needed help, she had no diagnosis and was not seen how much support she really needed. At first she was not gong to be provided with any extra help or funding for help. I ended up paying for a full educational psychologist report. It was expensive but thorough. With that and support from sendiass ( which might be something else in other areas) I fought back. She then got a significant amount of help and ehcp. She now also has social care support and pip. I think if I hadn’t got the report it would have taken much longer to identify and name her disability. If you feel there is something wrong, it is very likely you are right.

Mummyof03 profile image
Mummyof03 in reply to Manyjobs

I think that might be the route if the docs aren't any help tomorrow. I know there is something wrong, I don't know what yet.

Thank you for your reply 😊

Mummyof03 profile image
Mummyof03

Update. I spoke to the doctor yesterday and went through everything and he's said I need to go through the school to get the school nurse to do a review but the school is closed and the senco wasn't much help last time I approached her so I've gone directly to the school nurse. Wrote a long email yesterday so hopefully will hear something back next week 😊

Eeviee profile image
Eeviee

Hi. I would refer you to IPSEA and special needs jungle website for information but it is clear that no extra help will be funded without and educational health care plan or EHCP. These can take ages to get and in my experience require independent and privately paid for educational psychology reports and possibly many others in order to twist the arm of your local authority. You may have to do a lot if twisting and will need your school on board. Go straight to the head teacher not any one else. Good luck

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