Adult with autism behaviour issues

[Lindypops56]

Coping with autistic adult at home during lockdown- we are all at breaking point and feel very alone

[Hidden]

Yeah, my son (non verbal, low functioning autism) was with challenging behaviour/attacked the key workers but it is rare he did this - they decided to take him out twice to the park but luckily the college(autism specialist) took him back for 2-3 days - so he has activities to do and enjoys learning - I hope you find activities to do - plenty on amazon

[BenjiB]

I’m with you! My son was home 7 weeks. It’s been challenging. He’s back at his residential college now. I love him dearly but he was bored and with boredom comes behaviour.

I hope you get some respite soon xx

[Lindypops56 in reply to BenjiB]

That sounds familiar! He could go back to his residence but there are no day services pubs clubs etc so he would be even more bored there unfortunately. He does miss the staff so now he’s been told he can return he may make the decision to go back. What we don’t want is to have him forcibly removed as that then makes his placement seem a punishment which would be very counter productive!

We will get there - good to know we are not alone!

Thank you

[BenjiB in reply to Lindypops56]

We’re really lucky with my son’s college. His house is next to his classroom. The site has 54 acres of land with a pool, parks, allotment etc. Lots to do, more than here. They’re keeping the day as similar as they can to before so college during the day as usual just with less pupils!

This situation is so hard for our kids. My son is non verbal and has very little understanding , he has no clue what’s going on. Must be really confusing x

[Terry73]

I am sorry to hear that your feeling close to breaking point.

Do you have any support in place in someone maybe in your household or a carer that can give you time to take an hour out for you?

We still have our autistic son at home who has become extremely challenging and frustrated and doesnt understand this new normal that we are living in.

He normally goes to a 38 week residential setting and has been at home for 9 weeks now.

I just want you to know that your not alone.

[Lindypops56 in reply to Terry73]

Terry thank you so much for your kind words. It’s a bit of a rollercoaster- good days bad days. It’s very sad. It’s good to know we are not alone. This will all be over soon hopefully and life can get back to some semblance of normality!

[Sarah_Mencap]

Hello Lindypops56

I am so sorry that you are in this situation and that you aren't getting the support you need.

If you want to talk to someone about how you are feeling you can call the Samaritans at anytime by calling 116 123. There will be someone there to support you and talk about how you are feeling. Also see samaritans.org/

Please also get in touch with Mencap's helpline. It is open from 9 to 3pm, Monday to Friday on 0808 808 1111. It is free and confidential, and the trained advisors will be able to talk through your options at this strange and stressful time.

You should let your GP how you are feeling. I know you may not be able to see them face to face at the moment but you should be able to speak to them on the phone.

Are you able to talk to the people who would normally support you and let them know how hard it is for your family at the moment? Does your family have a social worker or someone specific that normally helps?

The National Autistic Society has webpages which may help -

autism.org.uk/services/help...

Please do get in touch. Our helpline is there for you and other families. Do let us know how you get on.

Best wishes

Sarah