Bad news from the scan. She has new brain mets. The Braf/Mek isn’t stopping the growth anymore which is so weird because her last brain scan 3 months ago showed shrinkage. And she’s been doing so much better with the exception of pain in her hip joints, it’s all so shocking. Basically the oncologist said we will probably not be able to slow this freight train and need to prepare for end of life. I don’t know how to do that with my 25 year old daughter. How do you prepare your kid for end of life? What the fuck.
I’m in CA now packing her apartment and will start the drive to MA tomorrow with a friend. We meet face to face with oncologist again next Friday to explore options and come up with a new plan. She has been great communicating via phone and email and we appreciate her candor. I just expected to have better results. Ugh