Treatments, help

[Claref1971]

Hi new here. Just wondered if anyone in Scotland gets any kind of treatment for their ME/CFS. My doctors are useless iv spent hours googling and reading then going back to him and saying could we try this see if it works. He always fobs me of saying our health board won't prescribe it or we need to find a specialist who can prescribe it for me. I'm sleeping most of the day I'm currently spending all day and night in bed and I'm exhausted and worn out. I'm also at the end of my tether I can't do this much longer. Any suggestions gratefully received xx

[frogwell]

Dear Clare, it really is a case of self management, wherever you live. Look at the ME Association website and see if there is a local support group you can join, or at least someone you can phone. If you are sleeping a lot, then just go with it and don't worry about it- your body is saying it is worn out, because it is not making energy. You have to rest, and let it recover. 2 books I recommend: 'Better recovery from viral illness' by Dr. Darrel Ho-Yen, and 'The diagnosis and treatment of ME and Chronic Fatigue Syndrome' by Dr. Sarah Myhill.Dr.Myhill has long fought our corner; she has a website , and you can buy all the supplements she suggests from her.

[Brighteyedbabe78]

Unfortunately here in Scotland there are little to no specialists around. Most Drs are also useless. Try find a GP that understands the condition and discuss a treatment plan. Good luck 🤞

[1bettyd]

I know this is an old post but just in case it’s still being read. Edinburgh has a me/cfs clinic at Astley Ainsley hospital. I got referred by GP, others were referred by specialist. It was mainly about managing symptoms and how to deal with being ill. I got a lot from it and learned more about pacing amongst other things. I was in group sessions which I thought I’d hate but it was good to be around other people who understood what it was like. I’ve heard some say they did not get anything useful and I think it depends on which practitioners you get.