Hi. I am a mum of two very energetic boys 8, 3. Diagnosed with cfs in July this year so in the very early stages of trying to recover. In denial, currently in a cfs crash and struggle to do anything. Took my little one to nursery which is 20 min walk round trip thinking I was a little better and have delayed my recovery. Husband is having to do school runs and grandparents have done it when hubby at work. I feel absolutely USELESS. I remain in good humour but this fatigue along with muscle pain is overwhelming.
I fall into the trap of when I feel well, I want to go out to a shop. Or I will clean a cupboard or do just do something a normal human being would do. I have now decided to trial not doing that. When I am better I have to just stay doing nothing. But it's so boring. Your head wants to do something your body says, er, no forgot about that.
I want to be able to laugh and have fun with my boys. Clean my house, Go to the shops for a mooch, maybe have coffee out with my husband, but I can't cos I know I will have to pay a heavy price. How frustrating. This is not living.
I have a pacing course comng up hopefully shed some useful light to aid my progress. No start my progress???? Or is that to much to ask?
Yes I'm cynical, frustrated but definitely not depressed.