I am new to HU. I read your post and you are obviously clued up on the subject. I wonder if you or others would give me an opinion please. Briefly, I became fatigued following a flu like virus in 2002. Visited countless doctors where I was fobbed off until 2011, when a new doctor at my local practice took me seriously and sent me to an NHS specialist. After a few minutes of conversation the 'specialist' declared me as having CFS/ME and asked what I thought he should do about it! I answered "How about some tests to see if I am suffering from some other illness that could be causing the fatigue". The answer, which I am sure you have heard before was "Under the NICE guidelines I can offer you no tests, only GET and CBT". I explained that I had been a member of a CFS/ME/FM group for years and none of those at the group that had taken up this offer had improved, in fact most were made worse. So I declined his offer of therapy(?)
In my opinion, I could be suffering from one (or more) of a whole range of illneses, but have no way of finding out what, or at least eliminating illnesses that can cause fatigue. lupus. Has anyone been through anything similar? Any advice would be welcome please.