fed13 in reply to Lizleiper

Thanks SO much! I never thought of asking my GP. Wish me luck! I shall follow your advice!!

Lizleiper in reply to fed13

Yes this macular app is a great one !. We don’t need to suffer in silence. So good we can share. Thank you macular society.

Good luck with your GP x

Reply (3)Report

Lizleiper in reply to ironbrain

Helo ironbrain

Yes I have been told that as well . I am not likely to ‘go running around’ with the drops. If they only knew why we were asking for them,I think they might be more lenient . If not I would continue to go to accident and emergency to get them to put in the anaesetic! The pain I get is so bad I would not mind if they ‘dug’ my eye out. ! Very pleased my GP agrees.

Ayralin in reply to tallyho

Tallyho,

Interesting about the hygiene prep. Here in Minnesota, USA - I go to a well respected private eye clinic. The injections are done by a retina specialist, a doctor. He has a nurse assist. The injections are given in a regular exam room. the doctor & nurse are in their regular clothes - sometimes the nurse is in a uniform. I am in my regular clothes. There is no drape on me, and the staff do not gown. I don't remember if either were gloves - I will look next time. Is this the protocol everywhere in the UK?

Lizleiper in reply to fed13

Agree with everything you have written fed13. I too no longer dread the post injection period . I am so relaxed now that I know I have a good supply of Anaesthetic drops . I will not be binning them for anyone 😀

ironbrain in reply to fed13

I did explain that the pain had nearly reached a point nearly beyond tolerance, that I was almost at the point of phoning 111 to see if anyone could bring me something. In the end I just verbally conceded that if he wasn't allowed to prescribe them then that was the end of it. Of course, I wondered who was responsible for that position and what the reasoning or whatever was behind it.

The thing is the situation of knowing what one might suffer having an injection is no better. I was told a general anaesthetic was out of the question and that there were some painkilling drops which might help to a certain extent. Nothing about just feeling some pressure, nothing about the existence of the Macular Society. Expecting to be able to ask further questions when I had the dye test (there was a waiting room full after me), I left it at that. When the appointment for the dye test came, there was also one for the Lucentis clinic afterwards. Much as I might now be grateful for that fact, at the time it seemed to me as if I was expected to calmly come along for the dye test and maybe have a needle stuck in my eye no matter what. Press 1 to accept, press 2 to re-arrange or press 3 to cancel. Result: no central vision in my left eye.

Lizleiper in reply to ironbrain

Dear ironbrain the anaesthetic drop we are talking about is not a general anaesthetic! It is the same drop they put into your eye before injection. It does not put you to sleep.

Sorry you too are having this awful pain after anaesthetic has worn off. Go and pay your Dr. a visit and tell him about the pain . I did and she gave me a small supply of anaesthetic drops . No harm in asking . It is such a relief to know I have them and will never suffer that pain after injection again . I did not know how much it was affecting me . I am so happy . Here’s hoping you will be too.

Reply (0)Report

ironbrain in reply to Lizleiper

Yes, I knew which drops you meant, and I don't suppose I thought a general anaesthetic would be too good an idea! Knowing if I'd be able to keep my eye still with a needle approaching it was another matter.

It's a struggle getting a prescription from one's GP for a few milligrammes of Valium to get through the night before – ask for anaesthetic drops as well, goodness me!

But I think what tallyho says is correct. On a couple of occasions I've scarcely needed paracetamol – whether it's getting the clip in without scratching the eye or some other part of the procedure, I'm not 100% certain.

Reply (0)Report

fed13 in reply to sheels448

Sorry to hear your hospital is unconcerned about your pain lasting for 2 days. They should be concerned! This is very bad. Yes, do go to your G.P. My post injection pain, although severe lasted a few hours. Managing to get 2 lots out of the tiny vials of anaesthetic drops meant it could be managed successfully. Let us know what your G. P. thinks/does. Good luck!

Lizleiper in reply to sheels448

Hello shekels 448! The pain I have is only really bad 2/4hours after injection ,once anaesthetic has worn off. It lasts usually until the next morning and then disappears. My eye still feels very tender but the excruciating pain has gone . I would not put anaesthetic in 2 days after. In your case I would take myself back to the eye hospital and let them see the state you are in . Like you, staff at the eye hospital really are too busy to really listen and understand just what the pain we have is like! That’s why I went to my GP who gave me the drops . What a difference it makes to know I have them and will never have to suffer that pain again!