I’m 56 not 65 yrs old- Sorry lol can’t bla... - Macular Society

Macular Society

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I’m 56 not 65 yrs old- Sorry lol can’t blame my eyes for that one!!Touch phone YES!!!

LuvmyGodnotAMD
LuvmyGodnotAMD

Yes just wanted to make sure before any reads that I fix my error.

Fortunately I’m 56 so hope that helps anyone replying.

Cheers xx it’s 2am so am going to bed but will read any response tomorrow.

Have a wonderful day night afternoon or evening as until this illness or is it a disease?? gets sorted and a cure found, time is of the essence.

My heart goes out to all of you as I think I know how desperate deep down it makes us feel especially when diagnosed?

5 Replies
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Husband was diagnosed with dry AMD a few years ago and takes areds Vitalux and also has cataracts. Was told there was no cure . But hang in there, my friend, there is a new treatment being tested , with great results and should be available soon. We`re very optomistic. info says it is laser but a cold laser that gives very good results.

Stay positive. That`s very important.

LuvmyGodnotAMD
LuvmyGodnotAMD in reply to Breau

Hi Breau,

Thankyou for your encouragement and news. Will that be available in Australia ( laser treatment?) . I’m terrified of any laser or needle pointing at my eye whilst I’m awake!! Do they put you out to it?

How long with Dry MD til it becomes WET and timeline between diagnosis and blindness?

Optometrist said that some at me “stage” can go through just needing glasses. Not developing into full blindness OR was she just being kind do you think?

I’m still in denial. I won’t let myself go blind and oh one other question is how expensive will this laser treatment be?

Thanks, I wish you all the success as it’s scary not knowing what to expect!! 😤😤😖😖😖

Qashqai-2015_
Qashqai-2015_ in reply to Breau

IM CRYING RIGHT NOW AS IM TERRIFIED TO BE BLIND AND HAVE ARTHRITIS ALL THROUGH ME IN SHORT MY HEALTH IS A MESS DUE TO WHERE I WORKED IN THE AIRFORCE. ALOT OF US GOT CONTAMINATED AND I CANT HELP WONDER IF THERES A LINK. SO WHEN AND IS THE LASER TREATMENT COVERED BY HEALTH INSURANCE FOR PRIVATE COVER OR WILL IT BE ANOTHER OUT OF POCKET COST?

IM FEELING SO LONELY AND SCARED. IM CLOSE TO CONSIDERING A PERMANENT SOLUTION AS I AM SO DEPRESSED THAT MAKING MY BED IS A MASSIVE CHORE FOR ME.....

HOW LONG BEFORE I SEE VISUAL CHANGES AND THAT WOULD BE TERRIFYING.... IM SOOOOO SCARED XXXX

It`s me again. I wrote that the treatment was cold laser but it`s low level laser therapy or LLLT . It is very new. Last December in France and as of July 2018 in Toronto,, ON. Canada

with 40 people being treated and tested. So we`re next, hopefully. Have a good week, friend.

Qashqai-2015_
Qashqai-2015_ in reply to Breau

IM SORRY I COULD NOT FIND THIS SITE AND MY SIGHT IS OK SO FAR.

WILL EATING PLENTY OF BLUEBERRIES HELP OR AM I WASTING MY MONEY?

WITH THE LASER IS IT AVAILABLE EVERYWHERE AS 40 PATIENTS ISNT MANY FOR ALL OF THOSE COUNTRIES.

NOONE SEEMS TO GIVE A RATS HERE WHEN I TELL THEM. THEY SIMPLY DONT UNDERSTAND HOW YOU DONT HAVE TO BE OLD TO GET IT.

WILL ADREDS HELP AND IM TAKING LUTEIN AND ITS GOT ANOTHER INGREDIENT BEGINNING WITH K..... SHOULD I DOUBLE THE DOSE LOL I AM DESPERATLY SCARED AS THIS ISNT HEREDITARY IN MY FAMILY HISTORY. MY DOG IS BLIND AND ITS GUT WRENCHING TO SEE HIM AND I DONT WANT TO FACE THAT.....,

IM GREATFUL FOR THIS SITE BUT WISH THE PRINT WAS DARKER AS I NEED CAPS ...

God Bless and May we all get a cure and soon as what do the injections do ? Aside from the trauma ?? Hugs for everyone going through this!!

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