I am newly diagnosed (last week, April 12/18) with extra nodal marginal zone lymphoma - had axillary node dissection and see oncologist next week about treatment. Started with sharp left breast pain, noticed enlarged underarm nodes. I am devastated with this news. I am 70. Wonder what treatments have been tried by members with this diagnosis?
Newly diagnosed lymphoma: I am newly... - Lymphoma Canada
I am sorry to hear of your diagnosis. You are in for a difficult climb....but you can overcome this disease.
I was diagnosed with T-cell non-hodgkins Lymphoma over 2 years ago. I've had 24 rounds of Choep Chemotherapy and an Auto Stem Cell Transplant. I was in good health prior to my symptoms. My symptoms included swollen feet, fever, arthritis and enlarged lymph nodes throughout my body.I was 57 years old at the time. I had a lymph node excised for my diagnosis as well.
The good news is that I have been CANCER FREE for 2 years. There is HOPE.....don't ever forget this. Surround yourself with friends family, and pets. Find The best doctors by doing some research online and in your area. Be sure to get a second opinion. My first doctor was awful and didn't even examine me. I looked for experts in the field and found Dr. Advanti at Stanford. She was amazing.
Sending good juju and positive energy your way. x0x0x0 kim
Thanks for your reply. Think mine is B cell extra nodal marginal lymphoma, not sure how it differs from T cell. Will have to Google. Will see how appointment goes with first visit oncologist this coming week, nervous. My symptoms were pain in left breast & enlarged underarm lymph nodes. Family doctor thought it was nothing. I wish.
In am currently 69. Was diagnosed with extranodal marginal zone lymphoma in April of 2015. Was stage 4. Was given 6 cycles of BR ( Bendemustine and Rituxan). This was followed with Rituxan once every 3 months for 8 cycles. I was in remission at the end. Between first and second cycle of BR nodules disappeared. I am still nodule free today that i know of. Doctor wants me to have scans but am concerned about so much radiation exposure. I feel i will know when it comes back and don’t feel early detection at this point has any affect on outcome
Hey Golfguy, This month, 1 year since diagnosis we share, I've had biopsies of 2 lumps/nodules, breast and back & got diagnosis today of back lump near my neck being lymphoma. Will hear next week whether I need chemo. How did you tolerate the Rituxan/Bendamustine? Want to hear bad with good. Think it will be happening soon. I wouldn't be concerned about radiation, least of our worries right? I am in Brampton, Canada, you? Fun times........
I have to say I was anxious before my first treatment. I was fine until later that night. I got sick and felt better afterwards. From then on I would take anti nausea medicine as a precaution. I did have a reaction to the Rituxan so i was given a cocktail of Tylenol, predisone and allergy medicine before my infusions. Also they took 8 hours to give me the whole infusion. As time went on I was able to decrease the time to 2 hours. I have to say that it took me a week after the BR treatments to start feeling normal again. This happened every month for 6 months. Once I went to the Rituxan follow up I always felt pretty good
Thanks for your input re Rituxan. I picked up my pathology report today and it states I have an unusual lymphoma. The lump on my middle back is just below my neck. I'll take Gravol pre chemo for sure, if I need chemo, find out next week. Take care.
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