newly diagnosed now started anti rejection any ad... - LUPUS UK
newly diagnosed now started anti rejection any advice all new. moved into my head etc frightened me more.trying to learn more.
Ask anyone here and they will tell you they felt the same when they were first diagnosed. It takes time to get to grips with Lupus. Starting a new treatment is bound to feel scarey, but maybe you can try to think of it as the first step to getting better. Don't be shy about posting questions, there's always someone here who will offer advice and a bit of encouragement. 
Best wishes
Val.
hi Chanel it does cabbage your head for a while your relieved its not hysteria hypocondria its a reall loaded diagnosis to get your hear around. it is very frightening. try to do little things you enjoy to distract you. if you find your getting properly depressed by it all do see your GP. take a day at a time some days will be better than others all the best
Chanel
If all you can manage is one day at a time, then one day at a time is what you need to deal with. After 15 years without a name for my condition I was initially elated to have a proper diagnosis. This of course soon gave way to fear. But you know what,~ it is what it is, and second guessing what the future holds is not always helpful.
Give yourself time to adjust and digest what is going on.
You are not alone and you will get your life back.
thaddeus snap, after 10 years of suffering all sorts of weird and wonderful symptons, when my dermy diagnosied me feb 2010 she gave me a piece of paper and told me 2 go onto a website that she had written down, but here we are now and ive learnt, "what i dont do today ill do tomorrow" ,
It is always hard to learn that your life is changing. When I was first diagnosed my sister told me it was ok to grieve for a minute for the life I used to know and she was right it was much like grieving the loss of a loved one, but as with anything similar to that your life does go on. You must make a choice and stay strong in the concept that you will "live" on and not allow this disease to control you. Do your best to get control of it. There will be ups and downs but focus on that which gives you strength. It isn't always bad work with your doctors communicate everything small things are often very important. Best of luck and remember there are many of us out here that have been right where you are. You are not alone.
I hear ya, Chanel. I, too, am on the "anti-rejection"meds- I am on generic Cell Cept. I started it in October (diagnosed 7/11/11) and until last week was on 4 per day. I was scared to death when I read the info that the pharmacy gave me on all the horrific side effects of this drug, but I didn't seem to have any of them. Until the 5th was added...yikes! It wrecked my stomach, has sunk my platelets AGAIN, caused terrible sinus issues and nosebleeds, etc. I see my rheumy monthly and called after being sicker than I have ever been ( well, other than self-inflicted!) . I went for a CBC yesterday and am waiting for results. I try as hard as humanly possible to be positive and maintain my sense of humor, but some days it is nearly impossible. Those days, you just get thru the day and the next one WILL be better!
