Hi my son is 19 and has been in hospital for 2 weeks. He is now in rehab getting the strength back in his legs. In July he had myocarditis and then pericarditis which is still on going. He had abdominal pains and his appendix was taken out. Shortly afterwards his heart rate was hi and he ended up having seizures and was unresponsive for over an hour.
He has had 2 ICU admissions and only went in to have his appendix out.
He is under a rheum and has just commenced Plaquinel and is on 30mg prednisolone. The Rheum said although all his bloods are clear she thinks it could be Lupus. He is having an MRI spine next week to rule out a neurological problem. He has had aching joints since a young child so I think he has always had this problem. He is lethargic and has been for two years since having glandular fever. He is loosing his hair and his feet and hands go blue. He has blurred vision at times and has to lock his knees to stand up. This has happened before when he had myocarditis and the strength came back slowly. I wish the doctors would put all of it together and not look at things separately as it seems to coincidental to be separate issues. Does any of this ring any bells for you guys. The Neuro doctors say it isn'
t SLE and my son is so desperate for a diagnosis so that he knows what he is up against. Now they have said that he is really upset and down in the dumps.