LUPUS UK

think im being cloned !!!!

Just wanted to say a huge, massive, enormous thank you to you all for you support a few weeks ago when i was ready to throw in the towel. It is really appreciated that people do care xxxxxxx

Went to see my consultant who took 7 bottles of blood ( cloning me ???!!! ) for testing.... She also put me back on hydro after many years of me being a pain in the arse and refusing to admit i have SLE !!! foolish but scared. I was also diagnosed with Fibromaliga ( spellings lousy) but i think you will get it... Life is really tough right now and sometimes i could cry for days with the pain. The hydro is making me feel really sick and crappy... I also have this horrendous pain in the bottom of my back.... connected????

Thanks once again all you lovely, wonderful people

Sending much love and gentle hugs xxxxxxxxxxxxxxxxxxx

2 Replies
oldestnewest

hello rebeccaann

glad to see you feeling emotionally better,i could and have many times cried and cried sometimes the stress and worry just gets to you and you can t help it.

i was put on hydroxy when i was diagnosed in feb this year and found i could not tolerate it at all. it made me feel sick and had terrible painful stomach and also bad indigestion which got worse and worse, and i can tell you i had horrendous back pain with it which i believe was my digestive system inflammed meaning i could feel in it my back causing sharpe back pain.

i was advised by docs to come off it straight away and within two days the pain had gone.

maybe have a word with rhumey nurse she might be able to advise.

debs

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Thank you Pinky x Thats much appreciated x

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