Worrying symptoms

[soozie1964]

Hi everyone, my first post. Diagnosed with SLE about 7 years ago, and had Previously also been diagnosed with Hashimotos Thyroiditis :o( . I was referred to Rheumatology at our local hospital. After discussion, it was decided to not give me any medication - just 'see how it goes'. In the last few months I am getting weird chest pains, a heavy feeling in my diaphragm area, and shortness of breath - even when I am just sitting watching TV, or eating a meal, or laying in bed. My GP has ruled out anything cardiac, but basically said "might be stress " - no mention of any of this possibly being linked to the Lupus ? Anyone else had similar symptoms ?.. have been reading about 'shrinking lung syndrome' - which is all very worrying.

[Spanielmadlady]

Hi.yes Ive had breathing issues including chest pain and shortness of breath for the last 7 1/2 years. I wont bore you with my story but rheumatology say I'm asthmatic my chest specialist says I'm not so had tests under an asthma specialist who thinks its connected to my lupus.chest pain isnt uncommon in lupus as we are more prone to pleurisy .my breathing issues have improved since taking lupus medication.stress can be a big factor as it is known to make lupus symptoms worse so keep it to a minimum. Lupus affects organs with connective tissue so lungs,heart,brain and kidneys can be involved. Breathing techniques help so try breathing in through your nose and out slowly through pursed lips. X

[TeaandToast94]

Yes I get chest pains when I’m run down and have had cardiac issues ruled out (apart from that I can be randomly tachycardic at times, but nothing that should contribute to chest pain)Like spanielmadlady says, many parts of the body can be affected. It’s one of the worst symptoms for me as I get breathless from walking up the stairs or to the kitchen sometimes and I had to come off an on-call shift at work the other night due to chest pains 😪

I have rheum in a couple of weeks so may mention it to him then and see what he says.

Hope you’re doing better soon, mine is less severe or noticeable when I’m not having a flare, not sure if yours has a similar pattern?

[MelOctober]

Hi, yes I have felt shortness of breath and fast heart beat several times over the last 6 years that I’ve had lupus. It’s scary and annoying. Doc did mention shrinking lung syndrome to me as well. I’ve been on and of low doses of prednisone for it. Stress adds to it. That’s for sure. I have a cardiologist on hand too if I need to see him. I feel my best when I’m low stress and weather is warm and dry. I can go months without a flare. Hoping you get more answers.