I have been taking micrphenolate for 6 month I am... - LUPUS UK

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I have been taking micrphenolate for 6 month I am having a lot of ulcers dentist said teeth are healthy any feed back would be helpful

daffodill2 profile image
11 Replies

Ulcers

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daffodill2
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11 Replies
PMRpro profile image
PMRpro

You should contact your rheumatologist - it can be a rare side effect of mycophenolate.

daffodill2 profile image
daffodill2 in reply to PMRpro

Thankyou for replying my consultant is ringing me soon, and have had blood test done today .

daffodill2 profile image
daffodill2 in reply to PMRpro

Thank for answering my consultant is ringing soon.

Ingrid1234 profile image
Ingrid1234

Not necessarily a drug side effect. Mouth ulcers have many causes:en.wikipedia.org/wiki/Mouth...

daffodill2 profile image
daffodill2 in reply to Ingrid1234

Thank for replying I am seeing a consultant soon .

misty14 profile image
misty14

Mouth ulcers daffodil can also be a sign of a flare. Hope they're not too painful. Difflam mouthwash can be very good for numbing the pain and getting rid of them. Have you got other symptoms going on as well ?. Are you due a Rheumy review as discussing them and your dose of Myco could be helpful for you.

I hope you've found Myco helpful as I took it for a long time very successfully.

Have a good bank Hol and keep safe. X

daffodill2 profile image
daffodill2 in reply to misty14

Thank you for replying I have been on micro for 6 months now and my consultant is ringing me on the 21st of June ,I have blood test every month so I am hoping my bloods are looking better ,how long have you been taking micro ?

misty14 profile image
misty14 in reply to daffodill2

Thats good daffodil that your Rheumy appt is soon.Hope it goes well. Sorry your having problems with your bloods. What dose of myco are you on?. I took Myco for many years successfully but had to come off it due to sudden side effects.

Enjoy this lovely sunshine if you can. Xx

I have stills not lupus and not on similar meds but can report a constant sore mouth, gums and throat, I use Tyrozet lozenges which help. Here’s the horrid bit - I also get nostril ulcers which are very sore indeed 👃

daffodill2 profile image
daffodill2 in reply to

Thanks for replying .

in reply to

I’m same but never occurred to me that this was Myco as I have Sjögren’s and mouth and nose sores are common extras. I’m just going up to highest dose of 3g now . Blood tests always fine. Maybe just not got your disease properly under control yet?