It is not always about answers, but Humility towa... - LUPUS UK

LUPUS UK

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It is not always about answers, but Humility towards us all๐Ÿ’•๐Ÿ’–๐Ÿ’•

thestorm profile image
thestorm
โ€ข7 Replies

The clearest lesson we can learn from scientific progress is how much we donโ€™t know and perhaps cannot ever know. During the Victorian era, scientists were confident they could predict the behavior of everything from giant galaxies to the smallest atoms from some of the simple mathematical rules worked out 200 years before by Isaac Newton.

But that confidence dissolved in the 20th century in the face of the spooky weirdness and unavoidable uncertainty of quantum physics. And we face the disorienting reality that most of the matter and energy in the universe is, and may remain, โ€˜darkโ€™ to us because our senses were not evolved to detect them. What we donโ€™t know is a lot.

Uncertainty is an even more pervasive problem in medicine. But usually it is drowned out by medical drum beating โ€” each scientific advance is trumpeted as a thrilling breakthrough, providing the always illusory hope that we are on the very brink of solving and controlling illness. But the promise is never delivered and the more we know, the more we discover how much we donโ€™t know.

So I say on my journey to find answers to symptoms and conditions is this, " The only certainty in medicine is, uncertainty and the appropriate response to uncertainty is HUMILITY."I just wish medical professionals could be more Hippocraticly Humanistic in our real world. Thank you for reading my plight and rambles. I do wish everyone much Love, peace, and wellness on there journeys. Blessings, Thestormy sunshine

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thestorm profile image
thestorm
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honeybug profile image
honeybug

๐Ÿ™๐Ÿค—๐Ÿ’–๐Ÿ˜˜๐ŸŒฟ๐ŸŒธ๐Ÿฆ‹๐Ÿ™๐Ÿ•Š

stiff19 profile image
stiff19

So true stormy, humility and respect go a long way. Itโ€™s so hard not having answers but when the answers are unknown doesnโ€™t mean the questions are non existent. On my journey I have been to docs , theyโ€™ve seen the problems and then say you need a test , they do the test with no clear answer and then told itโ€™s normal like the problem is non existent and sent away. I donโ€™t understand this, the concern for the debilitating problem, urgency of test then the test gives no clear answer ๐Ÿคทโ€โ™€๏ธ๐Ÿค” so itโ€™s normal. Normal for who? Why does everyone not suffer this normality?

I feel so much for you, itโ€™s hard to be unwell , and harder to deal with the whys of it, whatโ€™s causing it, how do I treat it if no one else will.

You are strong, you will see through this and your self worth will help you through, it hurts like hell the lack of humility, respect, understanding and itโ€™s made me crash several occasions but if you crash and burn , itโ€™s understandable, we are only human, but then build up strength and push on for the answers or like you say at the least a bit of humility we deserve.

You are not rambling but I do hear your plight, you will always find humility here.

Love and best wishes ๐Ÿ™ thinking of you ๐Ÿค—x

KayHimm profile image
KayHimm in reply to stiff19

stiff19 - you truly are in an impossible situation with no idea what is causing your symptoms and no path forward. Did the neurologist say if and when you would have further tests?

One thing that seems to happen to you is doctors look in one direction, send you to that specialist, complete tests but you are not explained the process. The neurologist was straight- forward in saying it was your eye that prompted them to send you to him for help. I wonder if he added any explanations or told you what is next.

You are right the question is still there.

Xk

stiff19 profile image
stiff19 in reply to KayHimm

Just to wait until things get back to some normality from Covid, he didnโ€™t want me at hospital yet (then) but surely soon I hope ๐Ÿคž , others seem to be going.

mena52 profile image
mena52

I love this post, thank you. Wishing you all well and stay safe & remember how strong you all are underneath even though you may not feel it at times. xx

Spotty-ewe profile image
Spotty-ewe

Very deep thinking there Stormy and so true. There is so much we humans donโ€™t know and the scientists try their best to discover the answers to so many things that puzzle us from where painted lady butterflies go when they disappear each winter and reappear each spring to why we contract illnesses or conditions and why each of us can react in a totally different way to these conditions, and to the drugs we are prescribed. So many questions and too few answers and with the population explosion more and more people needing help with each passing year.

So the only certain thing is the uncertainty. A humbling thought indeed and makes us all the more grateful when diagnoses of our long-term symptoms and illnesses are correct, and when treatments actually work. Because of the uncertainty such a diagnosis and effective treatment can take a long time in coming as so many of us have found, and some like poor Stiff are still waiting.

I wish you all the very best Stormy and hope you will have answers to your present problems from your cardiologist and an appropriate course of action. Keep us posted. Love, hugs and prayers. ๐Ÿ’๐Ÿค—๐Ÿ˜˜๐Ÿ™๐Ÿป๐Ÿ™๐Ÿปxx

Krazykat26 profile image
Krazykat26

The arrogance of the human beast eh? ๐Ÿ˜”We r visitors on this planet/home of ours..n we will never know it entirely!! No-one knows everything!!

Humility n admitting that they don't know but will try to find out is reassuring. My ๐ŸŒŸGP is one of those people..she admits openly that she doesn't know much about lupus BUT she treats me with respect n I know that she help as much as she can..I respect her for that!!

Gentle cyber ๐Ÿค—๐Ÿค—๐Ÿค— to u stormy ๐ŸŒˆ๐Ÿ˜ฝ๐Ÿ˜ฝxx

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