Coronovirus misery!: I am on hydroxyl and cortisol... - LUPUS UK

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Coronovirus misery!

Blueeyes57 profile image
9 Replies

I am on hydroxyl and cortisol. I have been almost self isolating recently anyway but not my sons are pushing me to do it completely which would mean not seeing my grandchildren for three months except via Facebook. They are what keeps me going as I have very minimal social life and I get depressed and anxious Anyway this is just making it so much worse! I know I can’t do twelve weeks not seeing them when I see them at least weekly for four hours. I know there are many in same boat. My sons are scared something will happen to me I have had pneumonia once few years ago and their dad my ex died just two months ago so I can understand their concerns. Would it be so awful to see my grandkids if I don’t kiss them?? What do you think??

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Blueeyes57 profile image
Blueeyes57
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9 Replies

Can they Skype or FaceTime you daily perhaps? I know it’s miserable not to be able to have physical contact with them but they are high risk spreaders and if you get Covid 19 then your sons will only blame themselves and your grandkids will suffer the repercussions of this too. Many people use the internet to be with each other when families live on other side of the world so you could perhaps see it as a similar situation - as if they have gone to NZ for 3 months but without the irksome time difference? 🤗

Lupiknits profile image
Lupiknits in reply to

I’d second this. You could even read them a bedtime story or such via FaceTime or Skype ( I don’t know how old they are) x

Just think of it this way Blueeyes, better to see them 3 months away then not at all🤷🏻‍♀️. These are serious times. That 3 months could end up being much shorter, but it’s so much better to be safe than sorry and you can FaceTime them.

I hate to make a confession, but, 22 years ago when my kids were little, they were getting over the flu when my parents came around. They were in their early 70’s. My dad got the flu (I’m certain from my kids). My Dad had been a smoker since age 10 (before the dangers were known) and had a newly diagnosed lung disease and heart disease. He also had had pneumonia a few times in his life already, which made it easier for him to get again. I loved (still do) my Dad with all my heart and soul. He got sick (I’m certain from that one visit to my house) which caused his health to go down hill very quickly and he died bravely. I will always regret letting him come over that day and not being careful with his health. Please, listen to your wise sons. They love you. And luckily are much smarter than I was. I really hate sharing this with you (with everyone), but I know you don’t want them to live with the pain and heartache of doing anything that could jeopardize your health. I’m sorry you/we all are in this situation, but it is what it is, and again, better to be safe than sorry.

Maybe you could have a FaceTime schedule which would give you something to look forward to each day and help with your depression? And a ‘tick off’ calendar to help count the days, kind of like an advent calendar.

All my best to you Blueeyes57. We shall overcome! 💪

honeybug profile image
honeybug

H Blueeyes57

🤗🌿🌸🦋

Ask yourself how would you feel if you were a carrier without symptoms and gave it to your grandkids.

God forbid that something undiagnosed with them made them vulnerable and any/all should die. Could you live with that??

EJ xxx

Kevin53 profile image
Kevin53

Our 18 month old grandson lives down south. When he sees Grandma on FaceTime he kisses the screen; when he sees Grandad he cries! Lol Best wishes Kevin

in reply to Kevin53

Cries tears of JOY!

Blueeyes57 profile image
Blueeyes57

Thanks all for your very wise comments! What a time it is. High anxiety on top of lupus doesn’t mix well!! Tho government doesn’t list lupus or similar illness as high risk, I am too frightened not to heed the advice tho as I said what happens after 12 weeks doubt it will just disappear! Anyhow I will contend myself with FaceTime kisses from the kids and parcels left in porch I realise I am luckier than some with no one so time to get bit of that “blitz attitude” I heard about from my mum and “Make do”!! All the best everyone.

Kevin53 profile image
Kevin53 in reply to Blueeyes57

Lupus is on the list:

Some groups are more at risk than others from COVID-19, these include those:

· 60 years of age and over.

· That have a long-term medical condition – for example, heart disease, lung disease, diabetes, cancer or high blood pressure.

· That are having cancer treatment.

· Those that are having treatment for autoimmune diseases, such as rheumatoid arthritis, lupus, multiple sclerosis (MS) and inflammatory bowel diseases.

· Those with HIV.

· Those that have had an organ transplant or a bone-marrow transplant.

Best wishes

Kevin

svfarmer profile image
svfarmer

You must listen to your sons they love you and want to protect you - ive had to take a very hard decision not to see my sweet sweet grown up son who has Down syndrome he is 28 , my other 2 sons are fine with it but he will not understand what is going on - I’m going to set up Skype to speak to him - it breaks my heart that I can’t give him a hug but I know I just cannot take the risk - so hard that it is - sending hugs 🤗 xx

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