So I have to be really honest here..... here I am so blooming disabled from this disease, cant walk even a few paces, cant take meds to help (long story see previous posts) so up until this latest flare I have been a very good actress, where i glam up get hubby to park outside of restuarant walk in and pretend nothings wrong - My way of pretending I am normal as I feel it gets me some kind of normality - I eat, get out, dress up (only lunchtime die by 5pm!!!!) then come home and rest
We are fortunate to own a home in spain (not a good idea as totally sun intollarant) but now have the car done with dermaguard and rock up in my gucci glasses and sun hat!!!!
But since the latest flare I cant walk at all, as pain so bad in knees and I am so dizzy I fall and I have hughes (untreated until I see consultant) so cant breath after walking . few steps - But I cope and just get on with it.
But heres the thing - I cant act anymore, cant walk into the restaurant, cant get to the loo, cant go to my husbands flying club and just sit and pretend as I have to use a motor scooter.........How do I get past this as I just want to be able to walk those few steps to pretend to others I am normal.
I just dont want all the questions - perhaps I should put a plastercast on my leg
No joke - I am really strong but cried all day today as someone clicked their fingers 5 weeks ago and the last of my tiny bit of mobility dissapeared
I know I may seem shallow and Im not saying 'Poor me' but just need some help as to how to lose the ego !!!