I have just been diagnosed as having lupas in the skin, im trying to research the illness but there are several types, and the hospital wasnt very clear she did say it wasn't discoid and tests for systemic were inconclusive so i have bern referred to a rheumatologist to look at me. I just want to know which one to look for.
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rjep70
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Hi, I am wondering if you might benefit from seeing a dermatologist. I was diagnosed with SLE, but it took so long to get my rheumatologist appointment that I ended up seeing a dermatologist first. For me, the dermatologist has been much more helpful. He gave me a prescription cream (steroid) that worked wonders. Until then, nothing I tried helped my skin - and I tried every at home remedy I could find!
I have SCLE very distinctive rash, look at lupus skin photo's to see if you recognise your rash, also get pictures if you are waiting to see doctors good for them. It was a rheumata!ogist that diagnosed me, so can be helpful too. ML
I agree with Eliza get an appt with a Dermatologist - I saw one before a Rheumy and he sent me for a scalp biopsy as I had a bald patch which was inflamed - it came back as Discoid but has been disputed ever since by other Docs. There seems to be a reluctance to give a name to the autoimmune problems. Accept you have an autoimmune and get it treated with prescribed drugs. After I had done this and was stable I found myself abandoned by all specialist and with an indifferent GP practice I found a Medicinal Herbalist. He sat and LISTENED and looked, and gave me a mixture which worked immediately to stem my coughing and has helped the side effects of Hydroxychloroquine. They work in conjunction with your prescribed drugs but are not on NHS. GOOD LUCK
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