Suddenly realised why I've been so poorly recently .... And it has made me so down !! I have a really bad rash all over my body and it hurts like hell ... My mouth is so sore and so is my nose, ears and I feel like I want to rip my skin off!! Last time I got like this my lupus was at its highest we're I work (in a large office) they have replaced all the lights which are bright white for economical reasons. This was done a couple of months ago and didn't realise I have been going downhill since. I need some drastic help to get rid of my rash and to be able to sit and do my work so I have arranged to see my doc this week. I can now feel my whole body burning while I'm at work...
Sudden lightbulb !!: Suddenly realised why I've... - LUPUS UK
Sudden lightbulb !!
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Well done for figuring it out! I just hope you're getting the help you need shortly, it must be excruciating for you to be at work under those lights!
Hurts like hell purpletop. More annoyed that it has taken till now to realise it. Hoping I can find an antihistamine to help
Donnygirl, Sorry to hear of your situation, I can't even imagine what that would be like, at first I thought you may have been referring to having shingles when you started talking about the rash so I'm glad it wasn't that. You mentioned antihistamine and I know from experience my Kidney specialist didn't like the fact that I was self medicating with over the counter antihistamines. He told me to take magnesium instead. He also told me to use it for a muscle relaxant as well. So needless to say I tried it and it seemed to work for me. Look into it, I was surprised when I did. Good luck with your light situation.
I have the same problem, I have been referred by the company occupational Health to have an assessment to see if filters can be fitted to the lights and PC. Hope you feel better soon xx
hi Donna like you i suffer from a rash because of depression its called psoriasis and its a red rash that i've got on my face, in my hair, on my chest, in my ears, its so sore it feels like you have used a very sharp knife and rub it over your skin, so i show sympathy towards what your going through, one thing i don't suffer is from Lupus but i have many others that are just has bad. take care hope you get something sorted and that you can work in comfort. Alan xx
The same happened to me and they fitted filters to the lights etc in my work area.
Hi Donnygirl,
Light sensitivity is quite a common experience for people with lupus. There's a number of resources for you to use. It's also your employer's responsibility to make reasonable adjustments to enable you to work.
Take a look at ECLIPSE - the Light Sensitivity Support Group. We've got a page dedicated to ECLIPSE on our website: lupusuk.org.uk/eclipse/. There's a number of great materials on there.
They have a number of products available that might be able to help you: lupusuk.org.uk/eclipse/prod....
Do you work in your own office, in an open office or are you regularly moving from room to room?
George
I did this at home - replacing all the bulbs with low energy ones and had very similar reaction. It was a complementary practitioner who worked it out and I put all the old bulbs back to find I was much better again - strange lot we are and so many don't believe us!