any reccomendations ?

[larissa]

Can anyone reccomend a good rheumy in Brighton / sussex county hospital ? I plan to go and see PALS for advice on changing my crap one ??? xx

[pattismith]

there seem to be lot's of crap ones something really needs to be done !!!!!!!!!!!!!!!!!!

[Callie]

Hi Larrissa

I live near Guildford but like you found local rheumy ( several years ago now) pretty awful, actually told me all tests were normal, found out several years later that my Anti DNA double stranding was very positive at that time ! Was able to see Professor Hughes himself in 2004 he confirmed that l had SLE and other bits for many years.

Sadly Prof Hughes retired from the NHS, but now l see a Dr Chris Edwards at Southampton he is a lovely man , very easy to talk to, and he listens , l mean really listens to his patients, in fact his whole team are really good backed up by Sally the lupus nurse specialist.

Hope you find someone soon. xx

[Cariow1]

I agree Southampton team are fab .. My son has SLE and they have been great .x

[carrie67]

Hi Larissa

I have a fantastic rheumy at Brighton hospital, Professor Davies. He is kind,listens to you and he has done numerous tests on me which has resulted in answers to some of the questions I have. Now I am on the correct medication and have not felt better in years. There are still bad days and pain but it is all at a tolerable level. I was referred to him by my dermatologist as I also have Discoid lupus.

I have seen other Rheumies but Professor Davies is by far the best, he is also very interested in Lupus. All I can say is Thank God I am now under his care. Good Luck and I hope you get to see him.

[panther50]

Hi Larissa

I agree with Carrie67 Prof Davies is an expert in Lupus, I think the majority of people in our support group see him and are happy with him. I think he is very good indeed he's very thorough and since I've seen him he's picked up quite a few things in my blood tests! I'd certainly recommend him.