Looking for local support

[PrincessTippytoes]

Hello I just recently been diagnosed with lupas Sle .... I feel so alone and my quality of life seams so bad right now I live in north east lincs .... hoping to find a friend ...

[lupus-support1 Administrator]

Welcome to LUpus Patients Understanding & Support (LUPUS) at HealthUnlocked.

We also have another website called the LuPUS Message Board where you can also post questions and talk to other people. Registration is FREE and we offer free information and free online psychological support. We specialise in psychological support with our own counsellor/psychotherapist available.

By becoming a Member, you will have access to the private forums and because they are private, only Members have access and even bots and search engines are forbidden.

Please use the following to complete the Date of Birth entry: nn-nn-nnnn where n=number. Thus, if your birthday is 5th May 1968, enter: 05-05-1968. Use the “-“ separator and not the “/“.

Please go to: lupus-support.org/ and Sign Up.

I look forward to talking with you more! If you have any problems, let me know & I will do this for you.

Sometimes we need to talk to people who understand and who are not family or friends.

You can always talk to me here. You can send me a private message anytime.

YOU ARE NOT ALONE!

With good wishes!

Ros

Disclaimer: No attempt is made to diagnose or to make any medical judgement. You are advised to seek the advice from your own physician. LUpus Patients Understanding & Support (LUPUS) is not a substitute for your own doctor.

[Cas70]

Hi Princess - yours is a natural feeling, I was feeling the same for over a year but then got in touch with Lupus UK

and found out where my nearest support group was. It helped so much! You find like individuals who are suffering just like you. Please call or email Lupus helpline and talk to someone. This forum is a great help too. Make the call - change your life and keep in touch Cas70

[HEAVENSENT93]

Hello I too have SLE lupus diagnosed in 2018 but continued to work until 2019 I was hit so hard major flare ups my face was so bad that I covered every mirror in my house but I learn to cope with this I had to step back and revaluate myself I see about 7 different doctors the pain and stiffness the hair loss lupus in my kidneys but I’m still here and I face a different Challenge everyday but I’m also a strong believer in God because there was time that I wanted to die but now I’m loving my life that was given to me from above Life is not going to be peaches and cream but I know that God will help me and be with me trust and believe in God he sees you Be Blessed