Can anyone relate to me

[odeetree]

Hi , I'm wondering if someone could shed some light on my situation. Iv been diagnosed with Undifferentiated Connective tissue diseas , iv been told this can lead to lupus or rheumatoid arthritis. Has anyone been diagnosed with this first ant went on to get lupus. I feel like my hands from my elbows down have lost their strength and the same from my knees down . It's really getting to me

[lupus-support1 Administrator]

Although I am not a medical doctor, there is a great deal of confusion over these labels. UCTD is a lupus variant condition and too all intents and purposes, you should be treated as if you have lupus ie according to your symptoms.

One of the peculiarities of lupus, is that symptoms develop over time, which is why unless you have classic lupus symptoms, ie a malar rash, lupus nephritis & a positive ANA, the specialist will wait and watch, before making a firm diagnosis. No one wants to have a diagnosis and for the doctor to change is/her mind.

No one can tell you whether your symptoms will worsen or change over time. Your symptoms currently include weakness in your arms and legs. You need to ask your specialist to explain to you whether your muscles are inflamed. Inflammation of the muscles is a form of myositis and common in lupus variant conditions.

It is very normal to have a wide range of informations and it is important to have a good support system, friends and family.

We also have another website called the LuPUS Message Board where you can also post questions and talk to other people. Registration is FREE and we offer free information and free online psychological support. We specialise in psychological support with our own counsellor/psychotherapist available.

By becoming a Member, you will have access to the private forums and because they are private, only Members have access and even bots and search engines are forbidden.

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Finally, if you are interested, please go to: lupus-support.org/ and Sign Up.

I look forward to talking with you more!

Sometimes we need to talk to people who understand and who are not family or friends.

With good wishes!

Ros

Disclaimer: No attempt is made to diagnose or to make any medical judgement. You are advised to seek the advice from your own physician. LUpus Patients Understanding & Support (LUPUS) is not a substitute for your own doctor.