Looking for diagnosis

[Christie22]

Apologies if I am not on the right place I ve been unwell for some time aches pains muscular and joint , some gastric issues , fatigue and tiredness , . Visite the dr blood tests undertaken liver APL out of kilter as is the kidney function ultrasound scan two days ago . Now the bloods undertaken also showed positive for ANA on two separate occasions ...I am obviously concerned this could be lupus or another auto immune condition but I need to get the diagnosis to get help and try to stop the damage . I think I need a ENA panel blood test and perhaps anti histone ....I’d be grateful for any thoughts this seem to come in phases and when at my worse I have strange temperatures too ....thanks for reading 🙄

[lupus-support1 Administrator]

I have only just seen your message. I am not at my computer. I will reply more fully later today.

In the meantime, you are alone!

Ros

[lupus-support1 Administrator]

Welcome to LUpus Patients Understanding & Support (LUPUS) at HealthUnlocked.

This must be a worrying time for you. It is frustrating not to know what is wrong or to have a diagnosis. Is there a history of SLE or autoimmune conditions in your family.

My recommendation would be for you to find a good rheumatologist, an expert in SLE. Not all rheumatologists are expert in lupus! St Thomas' Hospital, London is where you will find Dr David D'Cruz and I would recommend him.

By this, I am not suggesting you have SLE! A positive ANA can occur in a normal, healthy adult! A diagnosis is not just taken on blood tests, but clinical examination and this can take time. My diagnosis took 18 months and that was with Dr Graham RV Hughes! This is because no two people may be the same and there are many variants. This doesn't mean your symptoms cannot be treated!

I am not quite sure I understand. You are saying that blood tests of your liver and kidney are abnormal. Can you say what this means? You also had a scan of your kidneys: what are the results. It's important not to be too anxious about those blood tests and need to be seen in context of all your blood works.

We also have another website called the LuPUS Message Board where you can also post questions and talk to other people. Registration is FREE and we offer free information and free online psychological support. We specialise in psychological support with our own counsellor/psychotherapist available.

By becoming a Member, you will have access to the private forums and because they are private, only Members have access and even bots and search engines are forbidden.

Please use the following to complete the Date of Birth entry: nn-nn-nnnn where n=number. Thus, if your birthday is 5th May 1968, enter: 05-05-1968. Use the “-“ separator and not the “/“.

Finally, please go to: lupus-support.org/ and Sign Up.

I look forward to talking with you more!

Sometimes we need to talk to people who understand and who are not family or friends.

With good wishes!

Ros

Disclaimer: No attempt is made to diagnose or to make any medical judgement. You are advised to seek the advice from your own physician. LUpus Patients Understanding & Support (LUPUS) is not a substitute for your own doctor.