Morning blues

Hi , I'm new to this group , I have L/A . Every morning I suffer with nausea , limb weakness , my legs feel like the have lead in them .i have to walk the dog every morning, only a short walk but it leaves me breathless and dizzy sometimes to the point of feeling faint . I get very scared as I live on my own . I'm. Just on warafrin at the moment but see Prof Bruce next week for the first time , think I'm hoping for a miracle. How does everyone cope with this . I work full time god knows how , it's not a physical job but tiring especially with the brain fog and weakness . I don't let on at work how bad I feel sometimes as I can't lose my job. Any advice PLEASE x

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  • Welcome to LUpus Patients Understanding & Support (LUPUS) at HealthUnlocked.

    I hope your appointment with Prof. Bruce goes well. I have heard from other people that he is a very good rheumatologist.

    What you are describing are very common symptoms and I understand how anxious you are feeling. It is important to describe all your symptoms and because we frequently forget things during an appointment - and then remember as we leave - write down everything you can, with dates, so that Prof Bruce understands YOU, not just a collection of symptoms from a referral letter.

    You mention you live on your own, which increases your understandable anxiety. Do you have close family or friends with whom you can talk? This is very important, not just the physical, but the psychological-emotional aspects.

    We have another website called the LuPUS Message Board where you can also post questions and talk to other people. Registration is FREE and we offer free information and free online psychological support. We specialise in psychological support with our own counsellor/psychotherapist available.

    By becoming a Member, you will have access to the private forums and because they are private, only Members have access and even bots and search engines are forbidden.

    Please use the following to complete the Date of Birth entry: nn-nn-nnnn where n=number. Thus, if your birthday is 5th May 1968, enter: 05-05-1968. Use the “-“ separator and not the “/“.

    Finally, please go to: lupus-support.org/LuPUSMB and Sign Up.

    I look forward to talking with you more!

    Sometimes we need to talk to people who understand and who are not family or friends.

    With good wishes!

    Ros

    Disclaimer: No attempt is made to diagnose or to make any medical judgement. You are advised to seek the advice from your own physician. LUpus Patients Understanding & Support (LUPUS) is not a substitute for your own doctor.

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