Does this mean it's not Lupus?
Had loads of tests my positive P-an a is now negative, but I was on Azathroprine for two years.
My previous hospital said connective tissue disease, but new hospital seem reluctant to even confirm or deny this.
Not getting much relief from the Hydroychoriqune and still have good and bad days. But a 'good' day does not mean I can do what a 'normal' person can.
Been ill for over 4 years now, I have gone from we think it's MS, to connective tissue to we are not sure.
My fatigue is terrible, the brain fog and I can't walk up a flight of steps without getting out of breath, I'm 45 but feel 90! I have had a lung function test and I have scarring on my lungs and decreased capitcy.
I am waiting to go back to see the Rheumptologist but I don't have my appt date yet.
Any id as on where I should go next?