Still scared as usual

[Red58]

Off in morning flu/covid booster. Had chemo and immunotherapy last Thurs a. Big bit weary of it 😱

[Ollie13]

Hi Margaret hope the vacinations went well and your treatment is going well xxx

[RoyCastleHelpline Partner Ask the Nurse Roy Castle]

It's good to get vaccinated, well done, you are doing the right thing.

Best wishes,

All the support team at the Roy Castle Lung Cancer Foundation support helpline.

[Red58 in reply to RoyCastleHelpline]

Hi I have been told I have been restricted on forum could you please tell my why ?

[RoyCastleHelpline Partner Ask the Nurse Roy Castle in reply to Red58]

Dear Red58

We are unaware why you would be restricted, let me look into this and we will get back to you as soon as we can.

Kind regards

The Roy Castle Support Team

[Red58 in reply to RoyCastleHelpline]

Hi seems to have resolved no longer restricted thankyou

[RoyCastleHelpline Partner Ask the Nurse Roy Castle in reply to Red58]

Good to hearThe Roy Castle Support Team

[Begonia13]

Hi red58,I finished my immunotherapy a year ago. I was on Nivolumab for mastastic melanoma. I did not have very many side effects. Tired for a day and occasionally nausea for which I took cetrizine. Towards the end I started getting very itchy skin rashes. The doctors tried lots of things that didn't work. Now referred to dermatology who put me on a long course of prednisolone steroids to suppress my immune system. I am also having phototherapy for the rashes. I'm doing great now. I hope the itch doesn't come back when I am off steroids. My last two scans have also been clear.

Wishing you well.

[Red58 in reply to Begonia13]

That great glad hear it but good news 👍