Hi. I was diagnosed August 2015 with stage iv, adenocarcinoma, egfr+, exon 19 deletion, with mets to both lungs and spine. I started with radiation to my largest lung tumor and Tarceva in September 2015. I later had a one time high dose radiation treatment to my spine. My April 2016 scan showed No Evidence of Disease. Because of uncommon side effects of Tarceva, we kept lowering my dose until we ran out of lower dose options. I switched my targeted therapy to 250mg Iressa in June 2016. My July scan showed NED too!
I was having severe muscle and joint pain. My oncologist cut my Iressa dose in half. I cut my pills with a pill splitter and take 1/2 daily. That has seemed to help with some of the pain.
I live in the U.S. and can't find anyone here taking Iressa. I'm looking for others taking Iressa and advice on side effects and dealing with the pain.