The Roy Castle Lung Cancer Foundation
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A friendly ear

Hi everyone,

My mum has been possibly diagnosed with lung cancer, on New Year's Day.

She had a bronchiscopy last Tuesday. We are awaiting the results.

At home everything seems to be moving so slowly, with no real info on what's going on and what to expect.

Does anyone know how long it takes before treatment approx? And what things may happen next?

Kind regards Yasmin

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Hi Yasmin

So sorry to hear about your mum, I'm sure you're very frightened and bewildered right now. My husband has lung cancer which is also in his brain and is 51, he has never smoked and is very fit. We found out two months ago and the first few weeks are the worst as you feel lost. You will be going through a terrible time and will just want answers, that is how we were.

Once you get assigned your oncologist and a treatment plan then you will start to feel in control again I promise. Try to avoid random googling and stick to good factual sites like cancer research and Macmillan. My husband has had radiotherapy on his brain and is just having his second round of chemo right now (we are at the hospital), and has been surprisingly well throughout.

Try to do normal things with your mum if she is able and make sure you look after yourself, easier said than done I know!

I have rang the Macmillan helpline once and they were excellent, so please call them if you are frightened or sad or just want some info. Don't be afraid to ask your oncologist lots of questions either if you feel like you need to.

Best of luck to you and your mum

Xx

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Hi Rachel, 🌸

Thankyou for being so kind and responding to me. 🌸😃

I'm so pleased to hear your husband is doing well. That's great news. 🌸😃

How often does your husband have the treatment?

Mum is at the hospital next Wednesday for her biopsy results.

Iv spoken to Macmillan who were very kind and helpful. ( thankyou for that tip). 🌸🌸

Please keep me posted on how you are both getting on. I'm thinking of you both.🌸🌸 Big hugs

Yasmin xxx

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Sorry, one other thing, don't be afraid to push the hospital for results and appointments. I emailed a consultant from our hospital at the start when my husband was diagnosed after an X-ray and got my husbands scan brought forward by 10 days xx

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I totally agree with what Rachelhols has said and you are right it seems to take months before you get any news (it isnt that long but thats what it feels like) My dad has lung cancer and was diagnosed just before Christmas, now we are on our 3rd lot of Chemo lucky for us his chemo doesnt make him ill just tired. Fingers crossed for the results, hope they come soon.

lots of love

Francesxx

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Hi Frances,

Thankyou for your kind reply. 🌸😃

I'm so pleased to hear your dad is doing well.

That's fantastic news.🌸😃

Mum will be really happy to hear your family is responding well to treatment.

I'm hoping that we hear about mums treatment plan on Wednesday.

I'm thinking of you, 🌸please let me know how you get on. 🌸🌸Big hugs Yasmin xxx

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Oh and take a pen and paper to write stuff down, i didnt and afterwards i had trouble remembering what was said, now that could be my age or could be data overload in my little brain.

Lots of love

Francesxx

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Thanks ladies your both 🌟🌟🌟

😘xxxx

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Hi Yasmin

Glad to hear your mum has her appointment through next week.

As Frances says, take pen and paper, good idea! Also write down any questions you have in advance.

My Daryl has chemo every three weeks and so far has had no horrid side effects apart from tiredness for about a week or so afterwards.

Fingers crossed it will be good news for your mum. Please keep us posted on here if you get time.

Rachel

Xx

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Hi Yasmin when you see oncologist you can request a copy of clinical notes from each visit to oncologist doctor. .A copy is sent to your G.P and one to you.My husband has lung cancer and has his 4'the chemo session next .1st chemo he was tired and first week after slept lots.2 nd chemotherapy was not to well after .3 rd chemotherapy dose was reduced and as before he slept lots and no appetite .But after 10 to 12 days feeling better ..

We have kept a diary from day one chemotherapy can help you to look back on how treatment going. So no need to take notes the clinical notes will do for you.We found helpful as we have two daughters and the letters helped explains about their Dads condition. Do hope things go well for all of you Jeaniec xx

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Hi Yasmin

Just wondering how you are and how things are with your mum

Rachel xx

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