So sorry to hear about your mum, I'm sure you're very frightened and bewildered right now. My husband has lung cancer which is also in his brain and is 51, he has never smoked and is very fit. We found out two months ago and the first few weeks are the worst as you feel lost. You will be going through a terrible time and will just want answers, that is how we were.
Once you get assigned your oncologist and a treatment plan then you will start to feel in control again I promise. Try to avoid random googling and stick to good factual sites like cancer research and Macmillan. My husband has had radiotherapy on his brain and is just having his second round of chemo right now (we are at the hospital), and has been surprisingly well throughout.
Try to do normal things with your mum if she is able and make sure you look after yourself, easier said than done I know!
I have rang the Macmillan helpline once and they were excellent, so please call them if you are frightened or sad or just want some info. Don't be afraid to ask your oncologist lots of questions either if you feel like you need to.
Sorry, one other thing, don't be afraid to push the hospital for results and appointments. I emailed a consultant from our hospital at the start when my husband was diagnosed after an X-ray and got my husbands scan brought forward by 10 days xx
I totally agree with what Rachelhols has said and you are right it seems to take months before you get any news (it isnt that long but thats what it feels like) My dad has lung cancer and was diagnosed just before Christmas, now we are on our 3rd lot of Chemo lucky for us his chemo doesnt make him ill just tired. Fingers crossed for the results, hope they come soon.
Oh and take a pen and paper to write stuff down, i didnt and afterwards i had trouble remembering what was said, now that could be my age or could be data overload in my little brain.
Hi Yasmin when you see oncologist you can request a copy of clinical notes from each visit to oncologist doctor. .A copy is sent to your G.P and one to you.My husband has lung cancer and has his 4'the chemo session next .1st chemo he was tired and first week after slept lots.2 nd chemotherapy was not to well after .3 rd chemotherapy dose was reduced and as before he slept lots and no appetite .But after 10 to 12 days feeling better ..
We have kept a diary from day one chemotherapy can help you to look back on how treatment going. So no need to take notes the clinical notes will do for you.We found helpful as we have two daughters and the letters helped explains about their Dads condition. Do hope things go well for all of you Jeaniec xx
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