Scaredlady in reply to Hidden

Yes, it comes out of the blue and then nothing is the same after. I remember wishing that I could 'unknow' that information, but gradually we slide into whatever route we choose and it all goes on. Human beings are remarkable resilient I feel. We all do our best to cope with whatever life flings at us. It is bad enough for those who have it-but think it is worse for loved ones who have to watch helplessly.

Take Care

Best Wishes

Laura

Scaredlady in reply to LorraineD

Thanks Lorraine

Haven't had time to go to Cancer centre. It's Penny Brohn quite close to me. Have been too busy infiltrating the MS centre

Scaredlady in reply to LorraineD

Hi Lorraine

Yes, would be pleased to do that if it might prove helpful to others. Would like to assess how I am at the end of this course of treatment though. Wouldn't want to encourage anybody down the garden path as there is a cost involved, which to me was worth making the leap of faith.

Best Wishes

Laura

Scaredlady in reply to cathmor

Hi Cath

Multiple Sclerosis centre. They are a charity & have hyperbaric oxygen chambers. You can enrol & they let you use the chambers for a smallish fee. When I was first diagnosed I did quite a lot of research about various things. I'm not good with drugs & have always been suspicious of chemo. My simplistic attitude is that Cancer loves sugar & hates oxygen-so I determined to deprive it of one & flood it with the other. oxygen therapy does not have 'rubber stamp' from any of them's that know them's that know, but many of theMS patients swear by it and find it helps their condition enormously. I agree, the oncologist told me that chemo was only thing and it had to be done immediately or it would be too late. Despite the fact that all they were offering me was perhaps an extra year of life in which I'm sure my quality of live would have been badly compromised. End didn't justify the means for me. To be fair when I categorically refused chemo, nobody gave me a hard time. The oncologist said that he didn't blame me & my GP after some thought said that he would do the same thing. At the moment I am attending the Dove Clinic in Twyford and having Vit C efflusion & ozone therapy. They are really wonderful & seem to have a pretty big client base. I am having a course of 15 treatments on a daily basis. Julian Kenyon who is the clinical lead has been feeding me an assortment of supplements & an off piste medication 'Low dose Naltroxene' which is another drug not taken up by orthodox medicine. I believe it acts to restrict the blood supply to the tumours-I could be wrong.

The treatment is minimally invasive & not giving me too many problems, although I'm told having 5 a week is a quite a burden on the body. A lot of

people only manage two a week. It does cause a little pain & increases the cough as it causes tumour swelling before the Cancer cells committ Hairi Kairi(hopefully). I am having to stay away from home as they don't want you driving after the treatments & I live two hours away. I'm treating it as a holiday and have got myself the cutest little character cottage 2 mins walk from the clinic-so it's all good.

I did feel that when you refuse chemo you become personae non grata to a certain extent & have to say that I am dissapointed in NHS. As far as I can see it's a one trip poney as far as oncology goes. I'm also not sure that they really have a serious take on this Cancer business-mainly because they are determined to have a pharmaceutical 'cure' & I am sure there are more roads to Rome.

I did ask GP if primary care trust would fund my treatment, but answer was a very big fat no. So I am having to bear my own cost. Told my daughter that I'm spending her inheritance(very little anyway) and she laughed & said she was pleased that I was if it works.

There are all kinds of alternative treatments that people have verified that they have had success with. The Gerson Therapy is another one that I think has legs. Strict dietary regs-but that shas been around for years & saving lives.

The Internet is an amazing source of info & I have also seen a lot of interesting postings & information on the dreaded Face Book.

What I couldn't understand at point of diagnosis, after taking great pains to tell me that Cancer is a very personal illness & peculiar to each person, they then proceeded to offer the exact same treatments as blanket coverage. To me it didn't add up.

Don't ignore the spiritual aspect of the operation. I believe Cancer develops from mind, body & spirit & therefore needs attacking on all those levels.

I think your husband needs to investigate the options & go for whichever route that gels with him & of course is affordable.

I got a very good book from a company called Agora Health(Google) I think it is called, 'Tommorrow's Cancer Cures Today'. This in fact was where I found the Dove Clinic, after I decided that I wanted Vit C. Worth getting that book.

Sorry, this is one of my epic e mails. Hope your husband finds it of some interest. Sounds as if we have a similair diagnosis and I hope that he will find navigate the options & find the one for him.

Best Wishes

Laura

Scaredlady in reply to cathmor

PS I don't think cannabis oil is illegal as long as it only contains CBD not HTC. HTC causes the tripping effect & you couldn't take the oil if it has it in-you would be comatose most of the time. There was a very good video on U tube. Lady with lung cancer, couldn't deal with chemo. Australia I think she came from. Her husband made some cannabis oil for her himself. He didn't manage to eradicate the THC & she was sleeping for 20 hrs a day. Then the rejigger & made it into suppositories which she was able to use. 9 months on she is Cancer free after being given two months to live. I am getting my cannabis oil from a shop in Glastonbury. His website is Freecannabis.org I think. With regard to the strength-I don't know. I just got what I could in the beginning & started taking it. Free(that's his name) is now stockings cannabis paste which is 8.75 percent& he was telling me that he is trying to get a stronger one at 15 percent. I have been paying £60 to £70 for a bottle of oil which lasted a month or so.

Best Wishes

Laura