Patient and carer tips

Hello all

My name is Mark and I'm the health writer for Roy Castle's Inspire magazine.

I'm currently putting together our spring/summer 2014 edition and as usual we want to feature tips from people affected by lung cancer that could help other people affected by the illness.

So if you have something helpful you'd like to share, please drop me a line.

To give you an example of a tip, we featured the following in the last edition:

I always put out my drugs every evening, in a ritualistic way. I put out the breakfast plate and the drugs in my mug, so I can't miss taking them.

Hopefully speak to some of you soon,

Mark

Last edited by

10 Replies

oldestnewest
  • Hi mark diagnosed stage 4 adenocarcinoma had chemotherapy and now on tarceva every day 100 mg .. one tip I would recommend is ensure you get plenty of aveeno cream and make sure you get low dose antibiotic for the rash also clyndamycin face gel for any break outs it really helps. Tarceva also doesn't like spicy food so just beware and I take my dose at 10 o'clock of a night to avoid the fatigue. People also ask can you dye your hair I use olia which is ammonia free and still go out for a drink of wine with friends .The biggest tip is dont let this disease get too you as some days it will but you have to try and stay strong 48 year old non smoker .

  • Hi there

    Thank you so much for your tips. They're definitely the sort of practical stuff we normally feature.

    However, we have had a good response. So, at the moment, I'm sending on the tips I receive to Inspire's editorial board and they'll decide which ones go into the magazine.

    If we select one of yours, I'll let you know by early next week.

    Hope that sounds okay. And thank you again for taking the time to respond to my request.

    Mark

  • Hi there

    We've decided we'd like to use the following tip for Inspire, if it's okay with you:

    I’m taking Tarceva and it causes me a rash. I’ve found that Aveeno cream and Clindamycin face gel really help. A low dose antibiotic for breakouts is also good.

    It's just a tidied up version of what you told me. Also, could you please tell me your initials and county, or we could use 'michdon' as your name, if you prefer.

    Many thanks, Mark

  • Hi mark anything that helps initials M D from Merseyside or michdon whatever not bothered which ever is best x

  • Morning

    I think I'll use michdon, as some people might recognise your name from HealthUnlocked.

    Take care,

    Mark

  • Try your best to be positive and avoid stress.I find I can just about cope with my incurable diagnosis but anything on top just knocks me over the edge!Also try and get up, clean up,wear your makeup (only ladies!) Keep going.Somedays on chemo I got up ,washed my hair,did my makeup then had to lie down for a while...but I still did it! Julie

  • Hi Julie

    Thank you so much for your tips. They're definitely the sort of practical stuff we normally feature.

    However, we have had a good response. So, at the moment, I'm sending on the tips I receive to Inspire's editorial board and they'll decide which ones go into the magazine.

    If we select one of yours, I'll let you know by early next week.

    Hope that sounds okay. And thank you again for taking the time to respond to my request.

    Mark

  • Hi Julie

    We've decided we'd like to use the following tip for Inspire, if it's okay with you:

    Some days while I was on chemo I got up, washed my hair, did my make-up, but then had to lie down for a while. The main thing, though, is that I did all that and felt better for it.

    It's just a tidied up version of what you told me. Also, could you please tell me your initials and county, or we could use 'jujuju' as your name, if you prefer.

    Many thanks, Mark

  • Hi Mark I don't mind what you use.Initials are J.B. and county is Hampshire or jujuju really doesnt matter.Best wishes.julie x

  • Morning Julie

    I think I'll use jujuju, as some people might recognise your name from HealthUnlocked.

    Take care,

    Mark

You may also like...