Hi, I recently had a malignant tumor removed from my left lung. I am no stranger to NSCLC as this is my third occurrence. The first two were nineteen years ago. I always have no mets to anywhere. I had prophylactic chemo after the second occurrence. Now I am back to every six months CT scan
for the next two years to start. I don't want to feel alone in this fight so I joined this group. Thank you.
Welcome to our group. I was diagnosed with stage 4 NSCLC adenocarcinoma in 2013. There are more of us surviving and this is a great place to get support. I am still doing scans every three months. Life is good!
Thank you!
Prayers and welcome. No worrieswinter! They have come along way since I was diagnosed in 2010. On immunotherapy since August 2018. Came down to Florida for the winter . Went to Moffitt. I had one keytruda treatment ,Dr. at Moffitt suggested a different treatment as the keytruda stopped working after 16 months. Now on a clinical trial, scans yesterday another immunotherapy combination. Told scans ok another treatment today. No more chemo for me since August 2017 when I told dr. In NH, No More Chemo.
Thank you!
Hi notafraid, You are not alone in this. What kind of cancer did you have?
I was first diagnosed with emphysema and squamous cell lung cancer back in early 2013. They removed my upper left lung lobe and I was told I was stage 2 because there were 2 tumors. I had some "mop up" chemo which I didn't handle very well. Three months short of hitting the 5 year mark I lost the upper right lobe to a tumor they had been watching for just over a year. This time it was stage 1a squamous cell, so no chemo or further treatment necessary. I just "graduated" for the second time, to scans every 6 months. Like you I was told no mets to anywhere and all lymph nodes tested were negative.
I told my pulmonologist (in my foolish attempt to demonstrate my positive attitude) that I looked at it this way; when they removed those lung lobes, they also removed some of the emphysema. Instead of saying "that's a good attitude to have", her response was "that's actually a real thing" (yea, I know, it's called lung reduction surgery).
When I told my oncologist "if it comes back a third time, I'm keeping it, it's mine" he got this solemn look on his face and said "oh no, there are plenty of other things we can do".
I had to actually tell him that I was kidding, that I am just trying to keep a sense of humor about all this.
Sorry your going through this, but you were wise to join this group. I have been away from here for awhile due to life getting in the way, but I’m fond of this group of people. I have also had my middle lobe on my right lung removed almost 5 years ago due to 4 stage carcinoid cancer.Things are stable right now, but its an ongoing battle all of us. We are here for you whenever you need to vent or just to have someone to talk to that’s going through the same things you are.
Thank you!
Welcome. Your experience will help many. 19 years a survivor is a tremendous milestone. I’m sorry fo the need that drive you back but this is a safe place to be.
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