my hand is so weak: does anyone have a... - Lung Cancer Support

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my hand is so weak

cmilashoski profile image
7 Replies

does anyone have a lot of nerve damage from having a lung tumor removed, im going on a year and a half and I still don't have a lot of use of my right hand I did therapy and it is not getting better

on the bright side I have been NED since surgery so im so lucky just wondering if anyone out there is experience this I would really like to work but I cant even grip or lift or stand all the burning and tingling!!! but once again I stress im so happy to be alive

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cmilashoski
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7 Replies
Debby1125 profile image
Debby1125

I take gabapentin for my nerve damage. It seems to help some. I had surgery september 2016 and still experience nerve pain. Hope you get to where you can work. I'm going back finally next month and pray my feet hold up. Stand up type work. Feel better and just do what you can. Best to you.

scifiknitter profile image
scifiknitterBlogger

I've also heard of people using Lyrica for nerve pain. Talk to your doctor about options.

SusieJo1948 profile image
SusieJo1948

cmilashoy hi ihaven,t had that problem,but i,m sure others have. i really hope your feelings come back. when they operate they cut nerves which can cause witch your proplem. have you talked to dr if you do let me know. Ihad a painful 3years where the tubing was at my left side it was horrible. i still have some pain there,so i made up my mind it was going to get better. have dr what to do i will think of you and wonder if it got better.were all here for you. love susiejo1948

anrean profile image
anrean

I am on gabipentin for nerve pain after a mega dose of radiation to kill one of the lung tumors. It seems to help quite a bit. Talk to your oncologist and explain in detail what you are feeling to see if there is something beside physical therapy that can help you through this. Neuropathy isn't fun, but with time I am finding that it is slowly going away. Also, not all physical therapists are the same and you might want to find one that has treated symptoms like yours before. I called around and made sure the PT I chose was well versed in relieving my pain. Also, in addition to gabipentin, I see a pain management specialist - they are usually anesthesiologists who are well versed in meds to help. Keeping my brain was very important to me, so we worked to find a pain reliever that does not make me foggy.

Praying for the bet for you,

Lauri-Anne

Denzie profile image
DenzieModeratorVolunteer

Definitely look into physical or occupational therapy. Lauri-Anne’s suggestion to verify that they have experience with your type of injury is gold. Consider adding a palliative care physician to your team. They have extra education in addressing the challenges of long term survival.

katherineNED profile image
katherineNED

I had surgery 7/2014 and my upper arm and section of chest is still numb but still have use of my arm. Unfortunately surgeons lots of times cut nerves when thy do lobectamies. I had radiation on a lymph node 2016 that damaged some nerves so I have burning and itching as well as periodic pain on my chest. I take gabapentin and that helps some. I have quite a bit of neuropathy in my feet from chemo that the gabapentin helps with as well. Congratulations on NED!

cmilashoski profile image
cmilashoski

I tried the gabapentin didn't really help so the chemo could have done some damage too and the radiation I have numbness in underarm area also the burning and itching in hand is so unbearable sometimes I guess its just something to live with if this the worst then ill be happy I don't want my cancer to re appear and have to get more surgery because I don't think I can deal with more nerve damage to everyone out there I pray that they will hear NED

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