Sorry I've not posted for a while I've been really sick. I've been in critical care for past week finally got out today. Interestingly enough my team doesn't think it's the immunotheropy that's causing it but my cancer has lowered my sodium to a dangerous level. It's finally back up to 125 so I got to come home. Anyway I'm still thinking about all of you and hope you are doing well.
Sincerely
RW
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RwHayes
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RW, glad you are home! My dad ended up in the ICU from low sodium levels, it's a serious situation. Good to hear that your doctor does not think the immunotherapy caused it. Sending best hopes that you feel better.
How are you maintaining your sodium levels? I now wonder if that might have been the problem with my husband taking Opdivo last year. I know his potassium levels dropped a few times while in the ICU.
Was that in the hospital? What about at home now? Is your water restricted? Just wondering how/ what others might do to prevent the sodium deprecation so as not to get into trouble. More salt/less water? What would your recommendation be? He is having blood work done Thursday so I will watch sodium level for sure.
I think my water restriction is kind of permenant. And they want me to drink a litter of power aid and that's it. Now they givin me pills to and my sodium is doing really good at 132 now which is best it's been in a while!!
glad to hear you are back home ,and hope you continue to stay well, please can i ask which immunotherapy you are on my husband starts his next friday x
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