Change in diagnosis

[KarynBrown49]

I was first diagnosed with stage 4 the dr told me yesterday I was stage 3b I am to start my treatment Monday chemo &radiation feeling very hopeful

[Enjoyabull]

Wonderful news!

[Ruthie1950]

I also have stage 3B. I would very much be interested in hearing how you make out with everything.

God bless you throughout your treatments and may He give you new strength each day and a peace that passes understanding.

[KarynBrown49 in reply to Ruthie1950]

So far so good to much fluid one day had to go in hospital and take diuretic for 2 days had one day were I was feeling really bad other than that doing ok

[Denzie Moderator Volunteer]

It's so rare that I read of someone being staged down! Congratulations.

What chemo agents will you be getting?

[KarynBrown49 in reply to Denzie]

Etopocide cisplatin

[Denzie Moderator Volunteer in reply to KarynBrown49]

This is the same doublet I had. Expect things to taste metallic, use plasticware or chopsticks to counter that. Also, if you develop tuning in your ears or a cold burning numbness in your hands or feet inform your dr as neuropathy damage may become permanent.

My hair only thinned, it didn't all fall out. It can go either way and no way to predict what will happen. My hair did come back darker brown (replaced some gray) and curlier.

Stay well hydrated. That will help flush the chemo through without damaging your kidneys. Add a sports type drink or Dripdrops daily to replace electrolytes washed away by the extra fluids.

Eat lots of small meals. Keep snacks handy to your bedside or chair as the steroids may cause some intense hunger pangs.

Speaking of steroids, take them exactly as directed to avoid nausea. If they cause trouble sleeping try to take the last one about 4 pm

Stock up on stool softeners and laxatives as well as anti diahrrea meds as you might need all three of them in the same day.

I've probably overlooked something and will add more when I think of it.

[KarynBrown49 in reply to Denzie]

Thank you so much for the pull up I really appreciated the info thirsty quite often hair thinning tired from radiation other than that for the most part feeling OK

[JeanE41]

Wishing you well. Hope you have smooth sailing.

[anrean]

Congratulations on being down-graded - it is one of many steps in the right direction!!

[FtB_Peggy]

Karyn, you are sailing in the right direction! Please keep us informed. So good to hear.

[anrean]

Absolutely fantastic news! Hope all goes well with the rads and chemo!