Scared & frightened

[GainesH]

I keep having these weird feelings. Hard to describe. Out of body, I feel if I shut my eyes I want wake up. Pain is worse. So hot & sweating so much. Vision is like in a tunnel & it's dark at the end. I keep grabbing my wife. It's so scary. God help me!

[LORBIC]

Hi Gaines H; So sorry you are experiencing this, it sounds horrible. I would suggest you get to the ER, this does not sound like he should be happening. Maybe your hyperthyroid is too high, if so it will effect the heart. Good luck to you keep me posted on how your doing.

[GainesH in reply to LORBIC]

My wife called the dr & they thought it was from steroids 4 times a day. Now they think it's pressure on my brain from the tumor. I go to dr tomorrow so hopefully they find the problem. Meanwhile I'm waiting. It's not continually it's on & off feelings. Thank you for responding. God bless you.

[ParisFrazier]

I totally felt that way after brain surgery. If I did fall asleep, I would awake scared as hell!

It took a little time, but has gotten a lot better. Have you asked the Dr. For something to help with anxiety? Helps me deal.

I really pray God touched you for a blessed day . I hated the fear and anxiety. We need every moment to be good.

Here's to a great day fellow warrior!

[GainesH in reply to ParisFrazier]

Thank you for responding. I'm feeling ok this morning. It hits me on & off. I go to dr tomorrow so hope they get this resolved. I'm taking xanex but doesn't really help. I'm asking dr about something stronger. I'm on Zoloft as well. Crazy how we can have life so simple as far as health and boom we're hit with a train out of no where. God bless you my friend..

[ParisFrazier in reply to GainesH]

How did it go?

Are you ok? Looking forward to hearing from you? 💕💜💕

[GainesH in reply to ParisFrazier]

I go to Oncologist today at 2:30. Hoping for relief. I will let you know. Thank you & how are you doing?

[Hidden]

@GainesH Oh I'm so sorry your feeling that way. Can't you get something stronger for the pain. I know your afraid but don't give up Gaines fight stay strong a little longer. If you can do what the dr. wants to try. I care too much for everyone. I'll be here if you need someone we'll all be here to help you stay strong. Does your wife need to talk to someone shes probally scared for you. Gaines were all here with you. Your guardian angel is there beside you she will be there for you. Jo

[GainesH in reply to Hidden]

Jo this is Teddys wife. His name is Gaines Ted but goes by Teddy. He wanted me to get on here & read yalls messages & check on others. He's doing ok today so far. He's scared to death. I know yall are all scared to death. Faith, Love, yall, family & God is what's getting us all through this. What a horrible disease that's taking so many. I've lost my mother, Aunt & grandma within 3 months in 2000. I lost my fiancée in 2004. Now this disease is trying to take my husband too. I just hate it beyond words. Teddy said to tell yall he will update yall tomorrow on Dr's words. He said if this doesn't help him maybe it will help others.

[Hidden]

Its nice to talk to you so please know that we care not just about Teddy but you, you know that once someone gets cancer the whole family has it with him. So i'll tell you now its not just him that has an guardian angel we all have one watching over us that includes you and she'll be there the rest of are lifes. I want you to know that were here for and you if you feel like talking let us know we'll be here.and so will both of your gardian angels they will be with you alhways. there right beside you and they will be. Teddies is beside him so I know he's scared and so are you. But the angels will be right there with you. I'll be thinkingof you both Jo

[GainesH in reply to Hidden]

Jo,

Thank you for such kind words & feelings. I agree, we all are hit with this terrible disease. I held my mom's hand & my fiancée hand till their last breath. This is so hard on anyone involved with a loved one with cancer. Their hurt is your hurt etc. My heart goes out to each one of you battling cancer. It's the hardest road to travel down in life. Teddy repeats himself every night about how much he loves me & wants to make sure we're ok. I listen for him & his needs. The horrible transition cancer patients go through before the end is devastating. My heart hurts for yall, my husband. May God watch over each one of yall...

[Lalukie]

I often tell my husband that i do not fear death. That's easy. It's life that is hard. When those feelings start I want u to sit down, focus on a spot and think about good memories. Your center. A peaceful scene u can see in ur mind. And slowly inhale a deep breath through your nose. Hold ur breath for a second and slowly exhale. Do this several times and it will help u cope with those episodes. My thoughts and prayers with u.

I go to radiation oncologist tomorrow to check to see if they can help the mets in my spine. Does radiation to the spine hurt? Have u had it?

[GainesH in reply to Lalukie]

I will try this. Sounds like a great plan. No I've only had Radation on my left lung. There wanting to do SRS on the cancer in my brain. I hope this doesn't effect any other organs or areas around your spine. I never blistered and had 36 treatments. It started burning with last 10. My throat was on fire. It killed my Salvia glands which it wasn't suppose to. I pray this helps you.

[ParisFrazier in reply to Lalukie]

I can tell you it doesn't hurt the brain or skull . Other side effects but it doesn't hurt. Still scary.

I just go somewhere else in my mind. Hawaii!

Drink lots of water.💕💜💕

[GainesH in reply to ParisFrazier]

Thank you Paris. Glad to hear this. I asked doc, what do I got to loose?

[FtB_Peggy]

Teddy,

It is clear you are working overtime processing all of this, what a place you find yourselves in. Allow yourself the time, taking that deep breath to ride that wave of anxiety, slowly releasing it to let go of that feeling. Lalukie is right, center and see where you are then. You and your wife seem like a beautiful team, fighting, looking for peace within that, loving each other. Holding you close as you move towards that appointment today. Please let us know how you are, and definitely keep telling you medical team how you are feeling.

This is a community of heroes, and I stand in awe of each and every one of you.

[GainesH in reply to FtB_Peggy]

Thank you & will do.

[Marc_M]

Teddy,

I had NSCLC Sept 2011. Chemo/radiation knocked it out. Went back to work June 2012. Brain mets Jan 2013 treated with gamma knife and knocked or out. Worst part was steroids. Have had other mets to adrenal gland treated with chemo, srt and finally surgery. Been clear over a year. Hope this gives you hope. Wish I could help with anxiety and fear. I took meds, saw therapist, found local support group which helped the most, but I still worry about upcoming scans. It does get a little easier each time. God bless you. Reach out any time.

[GainesH in reply to Marc_M]

Amazing you are clear now. I pray you stay clear. We will find out what Obdivo will do for me. Chemo & Radation only shrunk tumor in left lung & not in my lymph nodes anymore. But went to other organs. Thank you for talking. Yall are helping me through this tough journey.