Why has my lymphedema had a turn for the worst over the last for months. I'm wearing 2 class 3 stockings on it's still is not good

[sharon1234]

Why all of a sudden has my lymphedema taken a turn for the worst and I DO not have cellulitis or any other infections. I have lymphedema in my left leg and genital area due to having cervical cancer 16 years ago go or more. I'm wearing to class II stockings on top of each other to help keep it down but somehow how it is managing how to get bigger and any exercise or been on my feet just makes it twice as worse. I have no active lymph nodes in my left side due to the removal of them from the Cancer

[Lynora]

Contact your clinic and ask for an urgent assessment.

Why are you doubling up garments? Were you advised to do this?

[sharon1234 in reply to Lynora]

I went last Wednesday and she didn't know why she just ordered me more stockings but Jews or do a strong or should I say stronger knit if not she's going to put me up to class 4

Sharon

[Sheilamoose]

Could well be due to the hot weather. I'm UK & been taught by my clinic how to 'self bandage' with the new Juzo washable roll wrap & brown stretchy washable on top (name escapes me atm). It's hot but forms a tube which does work (on legs too).

My ankles have also swollen up again with the heat. You sure you should be wearing 2 lots of stockings at same time??? I would go back to Lymphedema Clinic to get a check up.

[sharon1234 in reply to Sheilamoose]

Can you get the names of the self wraps you've got because I will ring her tomorrow as I've got juzo stockings but have also got Jews or leg wraps as such but they're on your velcro and they are black but I don't write them very much especially when it's this bad add as you can take them off and on when you please and they are so easy but if you could get me the names I will be very honoured and very grateful.... Sharon z

[Sheilamoose in reply to sharon1234]

Sharon - have replied with direct text. If you don’t get it yell & I will paste reply here but it’s rather long & detailed

[CCT67]

Persistent Summer heat is partly to blame.

If you’re wearing thigh highs don’t double up Class 2 as that is probably not helping the way you hoped it would. You could damage/develop vascular problems with veins under so much pressure!

Juzo has not yet come public about this but their R&D/product development at headquarters in Germany have concerns that the silicone top band (regardless of style of top band) causes dermal back-flow and/or re-routing of vessels based on their research. (I was told this by a Juzo employee).

I straight away discontinued wearing thigh highs. I’d worn Class 2 Jobst and Juzo thigh highs for 3.5 years when I learned of the complications from the top band/ thigh-high style in Jan ‘19 and changed to alternating between pantyhose style and knee high& Capri combo). I didn’t anticipate it but my legs have had less pain and some less swelling in upper legs since discontinuing the thigh-high style.

If you aren’t already doing SLD at least twice daily and lymph moving exercise then start straight away.

Haddenham Easy Wrap is an excellent leg wrapping system. After trying most of them on the market I settled with Haddenham which are also less bulky than many others, and they're available on NHS prescription