Did you watch Kathy Bates on Dr. Phil?

[sodas]

Finally, a celebrity is bringing awareness to lymphedema. I'm very pleased about that. Has anyone watched the full episode?

youtu.be/hX_u_gXoYJc(Not working as expected?)

[Dojo2927]

No I haven’t.... but trust me I am going to

Thanks for the heads up

[Kallenubble]

Thanks for posting this! No, I haven’t watched Dr. Phil in such a long time, but now I want to see the rest of this! It’s too bad that lymphedema is still only rarely part of any public discussions of cancer, as far as I can tell.

[CCT67]

Full episode link below

Kathy has been very involved with raising public and medical world awareness of LE for nearly 7 years as the spokesperson for LE&RN. She has appeared on a number of US chat shows and medical tv programmes, as well as Talks at Google (link below) which is much better viewing than Dr Phil which is mostly filled with annoying adverts! After the Dr Phil episode aired in February 2019 the LE&RN phonelines were flooded with inquiries, donations etc which shows how many people were touched by the episode. Slowly but surely LE is becoming more widely recognised and understood!

youtu.be/snXFk71dKE0(Not working as expected?)

lymphaticnetwork.org/news-e...

[StellaM in reply to CCT67]

Thanks CCT67 for the video X

Stan is THE man! Oh if only all medics were as empathic and as passionate as he....

And listening to Kathy Bates speaking was upsetting to hear,but uplifting too

I was aware it was World L Day on Wednesday March 6 but saw no mention of it whatsoever here in the uk,on news or in the media

It is truly sad and and terribly distressing how little people seem to care about us

I feel very very fortunate that i dont have lymphodema as a result of cancer treatment,but even so, i think all of us who suffer with this disease

( i am no longer going to call it a condition,which i did until watching this)

really do not get all the help and attention we deserve.

Shocking how the doctor held up the 1000 page text book on the lymphatic system,and yet trainee doctors get only 15 mins teaching on it in medical school 🙁🙁🙁🙁🙁 They should get sooo much more,and besides this,they should have to experience wearing a tight hot compression stocking or sleeve for a day and see how it feels on a normal limb,then imagine how that feels on a swollen heavy limb

XX

[lovesradio]

Kathy Bates is a fantastic advocate for us lymphies xx

[StellaM]

Kathy Bates..fab actress and great ambassador for us lymphies!

She was in a great film called Misery..not about lympho,but Misery is the first word that comes to my mind when i think of lympho/ lipo and dealing with it every day. Its comforting having someone like her on board.

Im guessing Dr Phil is on in the States? Will see if i can get it on youtube and watch, I' m in the Uk,and thanks for the heads up sodas and thks CCT67 for the other vid

XX

[CCT67 in reply to StellaM]

Hi Stella

Yes, Dr Phil is an American chat show host and not aired here but the link at the bottom of my first post is for the Dr Phil LE episode available courtesy of LE&RN website.

I agree with you about the low/no profile LE has here last week on World LE Day. It was actually LE Week but so few people knew. Our UK charities such as British Lymphology Society and the charity LSN did try to get the word out with the Sock It to LE Campaign, however the LSN is a tiny only volunteer charity compared to LE&RN which is US headquartered but has high a very high volume of fundraising and commitment to LE research (many $ millions). It’s also an international charity so it has a higher profile strengthened by Kathy B being spokesperson. LE&RN has strong links with the leading British LE clinical and research specialists like Prof Mortimer who has collaborated in research with Dr Stan Rockson for 20 years. Prof is also medical advisor to LE&RN and was just in India doing loads of LE education and learning about approaches taken in India to treat LE. If you ask LE&RN to be put on their mailing list you’ll find out all kinds of LE&RN activities and achievements internationally, and be alerted to new lectures in their webinar series which is excellent.

If more celebrities who have LE were willing to come out then it would become more widely heard of. Kathy isn’t the only one in Hollywood with LE but others are secretive as they worry it would impact on their career which they won’t risk.

As for your decision to referr to LE as a disease, technically it is a disease by medical classification (not a disorder or condition). So you are right to call it a disease!

Slowly but surely more medics and general public are learning about LE but it’s much too slowly!

[StellaM]

Thanks CC for the tip about getting on the LE mailing list,will do so x