I was shocked when I found out about my son's LE. We all know this feeling. Being angry and constantly questioning "why me?". I felt left alone with my problem and completely helpless. Didn't know what to do and where to start from. So many sleepless nights with one question shouting in my head "WHAT NOW?"
On my first post here I got many replies that made me feel better. Everyone was saying stay strong, got contact numbers to other people, fb groups etc. You guys are fantastic. Small message for you can be a massive support for somebody else!
I would like to say massive THANK YOU to emmaphoebe9. She supports me every minute. Emma spent so much time already explaining everything to me, tells me step by step what to buy and what to do to help my son fight with LE.
Emmaphoebe9 you make me stay strong and I cannot even explain how much you helped us already.
Hope to meet up with you very soon! God bless you all!