vasopressin prescribed

[Bemmyboy]

My urologist is prescribing vasopressin to eliminate my nocturnal loo trips. It was found I was urinating high volumes at night ( litre in one visit). Does anyone else had this drug prescribed if so does it help?

[Bemmyboy]

Hi bigleg,

I totally agree with you a lot of times doctors treat the symptoms and fail to look at the cause more often there are further problems that are left undiagnosed because the cause has never been tested for. I will certainly give this some serious consideration until further investigation has been done at the moment I am taking furosemide to eliminate the edema and flomax for an enlarged prostrate all water related as is desmopressin. Thank you for replying and many thanks you have certainly clarified a few things for me.

[abprops]

Well put Bigleg you hit it right on the head. Why let the patients problems interfere with more interesting activities?

I had similar problems while in hospital for a week in January following a radical prostectomy in December. While in hospital in January, I was producing large volumes of urine overnight leading to Uri Sheath failures and wet beds. Such a nusance to the medical staff, particularly when nurses were changing shifts in the morning. The solution offered was yet another drug to calm my bladder. Yet another of three drugs that failed to help calm my bladder, since December but a drug made me feel very unwell!

The readmission in January was to investigate abdominal and leg swelling but all that was done apart from a CT scan, which proved a fluid build-up, was nightly injections to prevent a DVT risk. I repeatedly asked could the swelling be due it be lymphatic problems, as a lymph gland had been removed in December, along with my prostate gland. But repeatedly asking such questions just made me very unpopular with the medical staff.

After discharge I had to call in GPs several times but they were obviously reluctant to accept the problem was due to the removal of the lymph gland. I then had to use these forums and the McMillan Help-line to obtain more information on lymphodema and a direct referral to a the Lymphodema PT based in the same hospital in which I spent that week in January. By then it was June. The lymphodema specialist, her colleagues in the same hospital failed to involve during my stay in January as, nurses, junior doctors, consultants and Nurse practitioners were not prepared to consider lymph problems or lymphodema. The lymphodema PT confirmed lymphodema, correct full length support hose were provided and have proved beneficial. I will now have yet another scan next week. But then there is no drug to deal with lymphodema it seems.

But then I had similar problems in 2008 when Neurosurgeons refused to see me as my symptoms were not severe enough. The neurosurgeon recommended my GP put me on anti depressants and Gabapentine/Neurontine. I was also informed the PCT and NHS did not allow any form of imaging for lower back pain. Four months later an MRI scan found the intra dural extramedulary schwannoma tumour crushing my spinal cord and the neurosurgeon agreed to see me. But then as the neurosurgeon wrote to the GP, most patients are more severely disabled by the time their tumours are diagnosed. This patient has very few neurological signs apart from falling to the left when heel-toe walking. They seem to completely miss the point, had I taken the drugs and allowed time to pass I would probably be in a wheel chair now. Though as the GP informed me, time itself is a diagnostic tool. The tool in the box labelled procrastination perhaps! But then as the Nurse Practitioner informed me in January, I met you before in 2009 when we decided you were an overanxious patient. As always, never mind the facts, just keep popping the pills as instructed, we are all to busy to be concerned with your thoughts and opinions. After all you are just the patient, what do you know!

[abprops]

I had the usual PSA tests, Digit tests, Ultrasound scans, CT Urograms all of which led the Urologists to conclude my prostate was relatively small and benign. But then my GP in his referral in 2008 said this man has no urological symptoms but is certainly concerned about prostate dance. I had serious instantaneous pains somewhere in my lower body and by 2009/10 was passing blood nightly for a week at a time. Cystoscopy internal examinations found no serious problems just flaky veins, in my prostate and bladder connection. in 2012 I had reason to question the Urologists, and additional blood test was done, then a prostate biopsy and the unexpected diagnosis was early stage prostate cancer with a few low grade malignant cells locked within the right side of my prostate. The suggestion was Watchful Waiting. But I had had enough and demanded surgery. An MRI and Bone scan were done to prove the malignant cells locked in the right side of my prostate had not spread to surrounding tissue or bone!??

The MRI scan indicated I had been suffering from undiagnosed prostateitis so I was given antibiotics!? But even more alarming the MRI scan showed the malignant cells were not confined to a small area in the right side of my prostate but spread throughout my prostste gland. The Oncologist said that the 18 needle biopsies had simply missed most of the cancer cells and could have missed them all. So much for PSA and Needle Biopsies!? My surgeon said my relatively small prostate gland could be easily removed by laprascopic surgery with full nerve sparing and an excellent prognosis. But following the operation the surgeon advised the left side of my prostate was in surprisingly poor mush condition and it had been necessary to remove the left nerve bundle, a lymph gland and a suitable margin of tissue to be sure the cancer had not spread further!? One PSA test has recorded the minimum recordable reading of PSA. I asked for another MRI scan to check the cancer had not spread but was advised there was no clinical reason for doing so. But this week with no warning I received an appointment for and MRI scan of both Kidneys!?

It seems that PSA tests and Needle Biopsies are very uncertain tests for Cancer. I don't know how reliable MRI scans are but they in my case proved much more reliable.

Its now 6 months since the operation, 8 Months since the MRI and bone scan, 9 months since the Needle Biopsies and 10 months since the last digit and PSA test. I wonder how far would the cancer have spread during those 10 months had I accepted the advice that Watch Full Waiting was NHS policy and I was likely to die with the small number of malignant cells locked within a small area on the right side of my relatively small prostate gland before the cancer became a problem. But a problem to me or the NHS1?

[memma]

Consider yourself lucky to have such an open-minded urologist. I specifically asked my urologist for this prescription and he turned me down and suggested I drink less fluid. Imagine that!