severe asthma and bronchiectasis - Living with Asthma

Living with Asthma

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severe asthma and bronchiectasis

Jonn54 profile image
10 Replies

I've had my second nucala injection and not really feeling any better still struggling to walk .

i was just wondering if anybody else is on nucala and if so how long before seeing any difference.

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Jonn54 profile image
Jonn54
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10 Replies
FightingAsthma profile image
FightingAsthma

Hi Jonn. I started Nucala injections November 2021. At first, I didn't feel any better, but the last 12 months I have felt like a new woman! I run and weight train again! So give it a few months and see how you go. Good luck.

Jonn54 profile image
Jonn54 in reply toFightingAsthma

Thx for the reply it's good to know I will persevere, hope you carry on getting better

Ravotrina profile image
Ravotrina

Hi Jonn. For me, the effects positive effects started 2 weeks after the injection. My pulmonologist has 3 patients in treatment with Nucala:

Me, almost immediately effect

Another one who had to wait 3 months to start to feel better

The third one needed 6 weeks.

It’s different for everyone. My case may be successful for my asthma and allergies, but I feel a lot of pain in every joint during the all day, and my upper back during night

Jonn54 profile image
Jonn54 in reply toRavotrina

Hi ravotrinaThx for the reply.can you tell me pls was youer or your friends response to nucala gradual ,as with me I've had 2 jabs now and feel just a little better I think,but peak flow and 02 levels remain low so just not sure if that makes sense?

Jonn54 profile image
Jonn54 in reply toRavotrina

Thanks ravotrinaSorry to hear about your pain in your joints hopefully it will calm down on its own accord.

Thanks for the reply it's reassuring

All the best jon

Ravotrina profile image
Ravotrina in reply toJonn54

thanks

Ravotrina profile image
Ravotrina

I don’t know about the other patients, only what my doctor told me. I personally don’t know any other person with eosinophilic asthma in my country.

Mine was super fast, I think I started to feel almost normal In 2 weeks. I had energy and was cured from the allergies I developed as and adult (dust and cats), took my nephews to the amusement park and I was even able to run a little to catch them. It’s important to say that my asthma only started like 5 years ago.

Now we have to wait what will happens with the spring allergy season that normally starts at the end of august (I live in the southern hemisphere). Other allergies like the ones to most condiments (only rhinitis) is still active)

I had 2 nighttime asthma attacks in 3 months. My asthmatic cough has taken longer to get better, specially since I got sick with the flu 2 weeks ago.

Before I started Nucala I ended up with pneumonia and hospitalized with every little virus, going up to stairs was impossible and walking a block was a kamikaze mission, I wasn’t even able to drive, cause I was feeling too tired.

JohnGoodwin profile image
JohnGoodwin

Hi John - give it time and dont put any pressure on yourself. I have been on it for four years - took a while to get going. Even now I still get very tired in and around the injection date. Jut hang in there. John

Jonn54 profile image
Jonn54

Thx for the reply john.its funny you mention the injection date.i was saying to my wife it seems for the first week I'm stronger but as week 3 approaches I seem to go back to being breathless again.its really difficult to know if it's a psychological effect.

Beasley63 profile image
Beasley63

Hello I have not had the Nucala but I have been on the Tezspire for 2 years. I have severe asthma. The Tezspire was doing pretty good but I have recent been diagnosed with the bronchiectasis and I am not doing to good now. What do you do for the bronchiectasis?

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