Long term asthma

[Maltesemama]

Hi! Wondering if this has happened to any of you. A lifelong asthmatic, I’ve always been able to treat and “kick it” within a week it two. Now I’ve had it for 3 months including a week in hospital and 3 ER visits. Docs don’t know why. Icky life changer for sure. Tests all neg. anyone else have a bout they can’t shake? Thanks! Linda

[AirIsUnderrated]

Poor you. It sounds as if your meds need reviewing. What are you taking?

[Maltesemama in reply to AirIsUnderrated]

Now we are trying 20 mg of pred every other day. Wixella 500/50 two x a day. Nebulizer and ventolin. Have been on super doses of pred. Moon faced now, trying to wean as described above. Thanks for responding! Any ideas welcome. Lin

[Thebird]

Hi, I have recently been in a similar situation in that my chest felt like it was in a vise. That lasted 3 straight months, month 4 and 5 I started to feel better. Now on month 6, I feel much better. Like you, I have no idea what happened to cause the set back?!?! I have never been knocked down this bad by anything. My experience tells me you’ll feel better soon, try not to lose hope!! My Dr added Qvar to my other inhalers, I went on a diet and lost weight and also worked on triggers.

[Maltesemama in reply to Thebird]

Thank you! I shall try not to lose faith! Just an awful way to exist having to sit all the time and not exert. Glad you got better!

[Mijmijkey74 in reply to Maltesemama]

I hope you recovered from this, that you actually didn't have covid as it certainly sounded very much like covid symptoms. I hope you are doing much better, not still just sitting, and are still very much with us. x x

[BrianJordan]

I used to be able to kick a flare in 2 weeks. It’s been 10 months and still suffering. Doctors are at a loss and have resorted to saying I am nuts, because the Steroids aren’t working.

[Mijmijkey74 in reply to BrianJordan]

Far to many doctors/specialists etc are great at belitting us, insulting us, calling us names etc to boost their pathetic nasty little egos (not all are like this) to make themselves feel superior when they can't find causes of our medical issues so they resort to derogatory behaviours towards us which offen includes terms of us being nuts/imagining things/mental health issues/dellusional/crazy/attention seeking/liars/lying/making things up as we go along/disturbed/ traumatised/ psychotic and so on, just to belittle and insult us to try and disguise their own ineptitudes in their medical knowlege and medical abilities.Just give them some back reminding them how they are supposed to be professional and that belittling and name calling and insinuating things about patients and to patients faces is highly unprofessional with or without medical facts to back up their unprofessional disrespectful bullying derogatory claims!

Don't put up with any of that derogatory behaviour from them, report them if necessary as it is not their right or place to be insulting patients and being bullies.

[Maltesemama in reply to BrianJordan]

Hi Brian,

I had an asthma siege for 5 months, couldn’t shake it, even with pred, so he put me on Colonzepam to relax me. It worked!

Such a crazy disease. One day it will decide to cease. Good luck!

[hilary39]

My asthma has worsened over time; my doctors have said that's normal and happens to a lot of asthmatics, unfortunately. My first cue it was worsening was bad flares followed by long periods of recovery and inflammation like you're describing.

Have you reevaluated your care plan with your GP recently? If you're on that much pred, maybe you need to step up your medicine regime and add another controller inhaler or medicine. Has your doctor talked to you about biologics? I'm on Xolair and it's really helped reduce my bad flares.

If you don't have a care plan this is a template: asthma.org.uk/b42999dc/glob...

[utkmybrthawy]

Yes! Right now! It's weird to not be healing. My body always heals! But a round of antibiotics (chest infection) and steroids later; nothing. No improvement. For some weird reason I feel embarrassed. Do I sheepishly ask my doctor to do the whole regime again?These posts comfort me so much. No so alone. Me, Palm Springs, California

[Maltesemama in reply to utkmybrthawy]

I’m sorry you are having the same “unhealing” problem. Trying 20 mg pred every other day. Gotta keep trying something, anything for relief. So far 4 days without crises! Let me know how you are doing. I’ll ask about Xolair. Good luck!

[Windchimes1 in reply to utkmybrthawy]

71 degrees is the best environmental temp for asthmatics. Above or below can increase asthma. It is ten degrees hotter than it use to be, plus you live in sunny CA with pollution and environmental air quality issues. Try an iq air gas air cleaner, and controlling your air temps to 71. It will help.