Fuck astmha let her die

[Dogo123]

New asthmatic here a was 25 years old and I don’t know about you but I’m suffer very much all day chest pains biology shots that not help and I have post nasal drip a lot of mucus and phlegm .and I’m lost hope about myself and my future and i thought about if asthma is genetic and running on family let’s not have children it’s sound horrible but I dont know about you but this is what I’m gonna do peace guys

[Troilus]

Hi Dogo,

I suffered a lot with nasal conjestion. I don’t think I blew my nose for 18 months. I was given a steroid nasal spray last March and used it everyday but it did not make any difference. I could feel the mucus sliding down the back of my throat when I went to bed at night. Gross.

In Feb this year I was put on Montelukast. My nose cleared almost immediately. I can feel nice cool air when I breath through my nose....wonderful. I can also blow my nose!

Might be worth seeing your doctor. The nasal spray might work for you, if not ask about Montelukast.

[hallermike]

I took a lab test at (Docs suggestion) for Genetic asthma as Grand Father had it and the test said my asthma was not genetic. Check with your doc.

[Putnam Asthma Captain]

Dogo, I’ve been there.

[d2read]

You are right, it can hurt. No one understands who hasn’t been through it. It’s frustrating. It can be expensive (at least here in the US with our screwy medical system and VERY expensive meds). I completely get where you are coming from.

But, man, you have it easy compared to what I went through. When I was born in the ‘50s, the docs told my mother “not to get attached, she won’t live to Christmas.” I can’t possibly make you understand what it was like to have extremely severe allergies and uncontrolled asthma — when there was virtually NO WAY TO TREAT IT for many years. I missed so much school — we figured 2-3 days of EVERY week! — that I was lucky to graduate, much less get into university. I spent my entire third-grade year out sick — at home or in hospitals.

It was incredibly lonely.

But in high school things began to change. Not the asthma, but my control over it — because I was taught by a brilliant doctor about listening to what my body was saying. And miracle! They began developing medications that helped treat, and prevent attacks.

I was told I could never have children, so imagine my surprise one day when I was pregnant. Given all my meds and my genes, not to mention my troubled marriage, I was worried. Then I miscarried, divorced and consciously didn’t get pregnant again (allergies and asthma aren’t my only genetically linked medical issue.)

Has it been all roses since? Oh, hell, no! You can read about my medical mystery and rare complications at AsthmaOdyssey.com.

But now I’m on Xolair (omalizumab) injections, a biologic treatment for severe allergies that has made a huge difference in my quality of life when nothing else had. Am I cured? No. Do I still have problems? In some kind — but they are manageable and rarely trigger my severe, life-threatening asthma attacks.

I am also on a second biologic for my rare disease, HyperEosinophilic Syndrome, Fasenra (benralizumab) which in 20 months has truly been a life-saving miracle for me.

This is to say, there are wide ranges of drugs and other treatments. Have you tried sinus rinses, 2-3 times per day, with two packets of the salt mixture each time? It makes a WORLD of difference in thinning the mucous and clearing it out so that meds can work. Because you tried one or two meds and they didn’t, you don’t stop! You keep trying with your doctor — some people like me need multiple, complex drug combos.

Have you really gotten serious about removing any triggers in your environment? Are you washing your (no older than 1 year polyester-filled) pillow in hot water and THOROUGHLY drying in a hot dryer EVERY MONTH? Do you use a dust mite-barrier case over the pillow that you launder weekly? Same thing with your bed. Have you removed all carpets and drapes and put all books and other items behind doors or inside boxes so there are fewer surfaces to hold dust? And do you remove the dust with a dampened cloth, not chemical sprays? Do you carefully clean bathrooms, kitchen, laundry areas etc to prevent any mold? Replace and clean filters in air conditioning and heating systems monthly? Do you have HEPA filters running (and replace those filters on schedule) in each room? Do you use a dehumidifier during humid times of the year, and cool-mist humidifier during dry times?

Have you given away pets? Changed laundry and skin soaps and cleaning products, changed your environment at work/school?

I KNOW EXACTLY HOW YOU FEEL! There were times I was so angry, bitter and hopeless I considered suicide.

Well, DON’T!

You have developed these problems at the right time, my friend, in that there is hope and ways to really help and make a huge difference in your life — but you have to get a grip and decide to do whatever it takes.

Write back, or write me through my website — I wish you well. But I also wish you the kick in the butt to get over the pity party and back to figuring out what you need and DOING IT!

Good luck.

Debbie

[Maryhart Partner Asthma Educator in reply to d2read]

Thank you for sharing your journey. Makes me realize how fortunate we are to have today’s medical care and research.

[d2read in reply to Maryhart]

Now if we could just get the amazing doctors with huge hearts and indomitable determination to solve problems cloned and out there for us all, and finally fix the US healthcare insanity that is laughingly referred to as a “system.”

[Wheezie1]

Dear dogo, wheezie1, here. That sounds a bit drastic, although it's up to you. If you live in the UK, you can treat your asthma without great expense. Yes, it can often be genetic. However, there are great meds now that didn't exist just a few years ago! You need to be patient. See a Pulmonologist and work to get your asthma under better control. You can live with it and once you do that you will have gained the maturity that is required to be a parent.

P.S. I'm on Xolair too! Also, Trelegy Ellipta and Arnuity Ellipta. In the U.S., these drugs are mega $$$$$! Count your blessings!

[frogsandangels]

I’m sorry you are having such a hard time. You should talk to someone about how you are feeling. It does help trust me.