What are the most cumbersome aspects of treatment?
What are the easiest or best parts of treatment?
Respond and reply to others in the comments below!
What are the most cumbersome aspects of treatment?
What are the easiest or best parts of treatment?
Respond and reply to others in the comments below!
Dulera, nebulizer and allergy shots
Hi Asthmagirl100 ! Thanks for your response. Are there any aspects of your treatment that you don't like or wish could be improved?
allergy shots 2 each week for almost a year now! The drive is 40 minutes to get to the office so that is difficult. I am taking numerous pills and Symicort inhaler...
Most cumbersome: changing meds to achieve control. Now on nebulizer 2x day. Ibuproprium bromide followed by Budesonide followed by perforomist. Ibuproprium bromide as needed every 4 hours. Rescue inhaler when out or at times necessary with others especially if I have an infection.
Singular pm. Took awhile to adjust to nebulizer- mental adjustment to increased treatment.
Truly, in my case, with increased pneumonias and bronchitis, etc. I had to adjust and accept changes.
Easiest/best: none are hard, just more time consuming and aggressive.
Best part-- switch to nebulizer worked to get past bronchial spasms and constant spastic cough!!! Opened up lower part of lung.
Flutter valve and breathing exercises are great!
As added note. At same time I was diagnosed with Primary Immune Dificiency. Have begun IVIG infusions every 4 weeks. So this added to increased infections which trigger asthmatic response and vice versa.
Add to above comment. Trying to put asthma and PID in balance. Regain my life and not feel like asthma and PID are controlling it.
Hi Mahod ! Glad to hear that you've found a treatment that is working well for you. Stay positive! Thank you for sharing.
Thank you. Honestly, multiple pneumonias, ER and hospital stays with increasing lung damage has been quite the journey. I sought out education and help to learn triggers, reactions ( hypersensitivity reactive airway). I was being told to "pace" myself. LOL, there was no rhyme or reason for attacks, so how do I pace? I asked for a class or group to learn more and understand my personal pace, etc. Was told I would "know" when to rest, when "pushing" was ok and when not. This was the most frustrating part, still is.
I have learned by trial and error. But again, I want to be proactive. Regain control!
I think about others new to this and hope there will be better "tools" to learn how to manage asthma. Unfortunately when your brain feels foggy from breathing issues it's hard to wade through resources.
I was so surprised to learn that my sudden inability to speak was a "sign" to rest.
Thank you for this site.
So glad to have you here! It sounds like you have lots of valuable experiences and knowledge to pass on to others struggling with asthma. Thank you!
Numerous visits to Doctor regarding chronic sinus lung infections .
No issues regarding taking meds..
I take multiple treatments. The most cumbersome is getting a combination of drugs that work. Also trying to coordinate between Pulmonologist and Allergist. The best part is when I get relief for the coughing and wheezing. A stressor is getting approval for drugs the Pulmonologist and Allergist agree I need. It takes months and then I may be denied.
Albuterol sulfate solution, Ventolin inhaler which does little and Advair when I can afford it. Seriously I have a Advair Discus at the pharmacy I won't pick up it's $ 398.88 unreal. I also get Prednisone and an antibiotic way to frequently.
Most cumbersome part is trying to find the right combinations of medications that will work with my asthma and also allergies. Best part of treatment I’d say is my amazing team of doctors! They all work together well, to make sure I am taking what I need and that it works well.
Advair diskus, incruse, q-var, albuterol nubulizer, singular, and xolair shot 2, 2 times monthly.
Advair diskus, incruse, and q-var in halers. nebulizer, allergy shots
Cumbersome - Trying to find the right med mix to establish some kind of daily control and because my allergy testing came back negative on everything, I haven't figured out what my triggers are yet. I have changed my diet and keep a log of any flare ups but there has been no consistency. That has been the most frustrating part for me. Best - finally knowing what is wrong and feeling like I have some control now when I start to feel "off", as scary as it is sometimes.
Even tho I’ve been dealing with asthma my whole life, since I’m an adult now, most everything is either inhalers or nebulizer. The hardest part is remembering to clean out the nebulizer cup, and parts. I’m handicapped now. Easy part, I guess are the inhalers. I haven’t found any best part of it, yet. Lol!
I take a LOT of meds for my asthma. Currently I do duonebs and then budesonide in the morning and at bedtime. I do another Duoneb at lunch and if needed due to an attack I will throw in another. My max duonebs per day is 5. I usually have to do two PRN albuterol nebs in the mid morning and early afternoon as well. In between and when I have the beginnings of an attack I will use my Proair inhaler. My controller ( lol) meds are Spiriva, Symbicort and Qvar. I also take azelastine and flonase nasal sprays twice a day and singulair tabs every day. Lastly, I take 5mg of daily oral prednisone.
I also take supplements, allegra and mucinex. It's a lot to manage but a big pill box and a sleek, silent, fast nebulizer makes most of it quick. The most cumbersome part is the time to neb the budesonide. It has to be done on a traditional machine which takes longer and is noisy. I do the morning one while applying make up and the evening one while watching TV or catching up on FB and Pinterest.
I am awaiting the start of Fasenra injectibles. I hope it will help!
Any person that plays a role in a positive way in someone else's life!
Duoair inhaler singular tablets and multi vitamins These are easy enough to take. But I have to keep changing it. Also if I become ill it takes more Medicines to help recover
Preventer inhaler - Seretide - with a spacer, and Ventolin as required. Incruse inhaler daily. Ventolin never helped much. My asthma is mostly triggered by infection and I'm guessing gets too acute too fast for Ventolin to help. Best protection for me is avoiding infections but also dust, smoke etc. Oral cortisone in rescue pack with antibiotics at home. At first sign of chest infection I notify my doctor, take antibiotics and step up asthma meds doses as instructed. (Comorbid bronchiectasis.) Nothing is actually difficult. But in the past I was not disciplined enough to use corticoid preventer regularly and I powered on through infections. I wish someone had told me to take better care of myself. Live and learn!
Advair 250 twice a day, singulair at bedtime, claratin everyday. Rescue inhaler an nebulizer as needed.
Inhalers and Singulair.
I am on nebulizers and a pro air inhaler. I just got off of allergy shots a month ago after 5 years, which was the only bad part of treatment
Albuterol nebs, low dose pred, Advair, an experimental asthma biologic called dupilumab and long term macrolide therapy with Azithromycin. All are easy to take except the dupilumab, which is a bi weekly injection that I have to go to the clinic for.