The University of Dundee recorded an interview with me about my petition regarding establishing NHS services for adults with CP. Please watch and share. I am keen to hear from adults in Scotland with the condition so that I can share those experiences with the Scottish Government. see: dundee.ac.uk/news/2017/cere...
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Hello @rcwallace,
I wholeheartedly agree with your petition for better adult services for people with cp. I wish it was a nationwide campaign as i live in England not Scotland.
I have experienced a worsening of muscle tone and tightness as i have aged. Which was so gradual that I was barely aware of it. I am 52 now.
It was pure happen stance that I was offered 4 weeks of neurological physio following an assessment for rheumatoid arthritis. it was my first physio for my cerebral palsy for 32 years and I felt very angry and sad at my stupidity for not having the presence of mind to request it sooner.
It was made very clear that i was only allowed 4 weeks of treatment which i have found very difficult to accept and i have tried to make the most of a 8 week exercise referral scheme at my local gym? which i was supposed to build on the benefits of doing physio. The experience has felt a bit like trying to fit a round peg in a square hole? I feel have benefited from increasing my exercise but it feels very hit and miss ??
On the plus side I am seeing a neurologist used to treating cerebral palsy and i am about to try baclofen for the first time? I am a little nervous as I tried a similar drug when I was 11 and felt like an octopus out of water for some time.
I wish you every success with your campaign.
Effects changing with age. 
My family keep telling me I can't do things 
Learning to swim the crawl 
I have just had the worst experience at an orthotics clinic ever!!!!!
Pain that does not go away :(